Children with vision impairment can receive a letter from Father Christmas in their chosen format, courtesy of our friends at RNIB. Find out more, here.
Category: Information and Support
Online Nystagmus Information Pack – one year on
Last November the University of Sheffield orthoptists launched their online Nystagmus Information Pack to great acclaim. The pack was jointly funded by the University of Sheffield, the British and Irish … Continue reading Online Nystagmus Information Pack – one year on
Patient Information Day – Moorfields
Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to … Continue reading Patient Information Day – Moorfields
How much do you know about nystagmus?
Try our fun quiz to find out how much you know about nystagmus and the work of the Nystagmus Network in just 2 minutes! Take the quiz
Calling Manchester!
We’re about to launch our very first local nystagmus network in Manchester. Your host, Nystagmus Network trustee, Marie Turnbull, is arranging a date, time and venue for your first get … Continue reading Calling Manchester!
Nystagmus Patient Information Day
The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for … Continue reading Nystagmus Patient Information Day
A new video on nystagmus
Published today as part of National Eye Health Week, a new YouTube video by Emily Davison, also known online as the Fashioneyesta, tells what nystagmus is and how it affects … Continue reading A new video on nystagmus
Little Amber – there to help
Nystagmus Network’s Rachel, writes: Here at the Nystagmus Network we’re always looking for new opportunities for our members. Recently we came across a charity awarding grants to blind and partially … Continue reading Little Amber – there to help
Publication update
With thanks to Mike Hughes, our volunteer benefits adviser, who has today supplied a newly updated edition of his booklet on nystagmus and benefits. The new version, taking into account … Continue reading Publication update
Guest post: Harry’s back at school!
Over the summer holidays we followed Harry’s progress as he underwent the Anderson Kestenbaum procedure to address the head turn associated with his nullpoint. Today we hear from Harry’s Dad, … Continue reading Guest post: Harry’s back at school!