Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here.
Individual support from our volunteer benefits adviser is available to members of the charity.
Our education support services
Members of the Nystagmus Network are entitled to free education support and information whenever and for as long as they need it.
This service is provided free of charge to subscribed members of the charity by our staff team.
Our information and support line
Our information and support line is available 24/7.
You can help us keep it open with a donation this Christmas. Thank you.
Find out more about Nystagmus is … this Christmas.
Our advent calendar of Christmas gifts
Throughout December the Nystagmus Network will be reminding everyone just how many wonderful gifts of support and information the charity has to offer, not just at Christmas, but throughout the year.
Each day a new gift will pop up in your nystagmus advent calendar on our blog, on Facebook and on Twitter. Please share these with your friends, family and colleagues and ask them to give just a little back this Christmas if they can.
Please also share our Nystagmus is … this Christmas messages.
Thank you for your support
Merton Vision Event
Merton Vision, London will be holding a patient information day tomorrow, Friday 23 November, from 12 noon to 4pm. Please come along to find out more about nystagmus and albinism. The Nystagmus Network’s Sue will be there to answer all your nystagmus related questions.
Seeing Beyond the Eyes
The Nystagmus Network is pleased and proud to have played a tiny part in the Seeing Beyond the Eyes project, headed by Dan Williams at Visualise Training. Thanks to Dan, opticians throughout England and Wales now have a handy resource pack and ongoing training programmes to help them signpost patients for condition specific support, including nystagmus.
A letter from Santa
Children with vision impairment can receive a letter from Father Christmas in their chosen format, courtesy of our friends at RNIB.
Find out more, here.
Online Nystagmus Information Pack – one year on
Last November the University of Sheffield orthoptists launched their online Nystagmus Information Pack to great acclaim. The pack was jointly funded by the University of Sheffield, the British and Irish Orthoptic Society and the Nystagmus Network.
The information is invaluable to patients, parents, teachers and clinicians.
Click here for the Information Pack
Patient Information Day – Moorfields
Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available.
There will be talks and lots of discussion about the way forward for nystagmus patient care and treatment.
The Nystagmus Network’s Sue will also be there.
Please click here for more details and to register for your FREE place.
How much do you know about nystagmus?
Try our fun quiz to find out how much you know about nystagmus and the work of the Nystagmus Network in just 2 minutes!