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Category: Information and Support

Merton Vision Event


Merton Vision, London will be holding a patient information day tomorrow, Friday 23 November, from 12 noon to 4pm. Please come along to find out more about nystagmus and albinism. The … Continue reading Merton Vision Event

Posted on November 22, 2018Author Sue RickettsCategories Events, Information and Support, Living with nystagmusTags albinism, Merton Vision, nystagmus
Dan Williams crouches beside his guide dog, Zodiac.

Seeing Beyond the Eyes


The Nystagmus Network is pleased and proud to have played a tiny part in the Seeing Beyond the Eyes project, headed by Dan Williams at Visualise Training. Thanks to Dan, … Continue reading Seeing Beyond the Eyes

Posted on November 13, 2018November 13, 2018Author Sue RickettsCategories Information and Support, Living with nystagmus, NewsTags Daniel Williams, Seeing Beyond the Eyes, Visualise Training and Consultancy

A letter from Santa


Children with vision impairment can receive a letter from Father Christmas in their chosen format, courtesy of our friends at RNIB. Find out more, here.

Posted on November 8, 2018Author Sue RickettsCategories Information and Support, Nystagmus is ... this ChristmasTags Father Christmas, RNIB, Santa

Online Nystagmus Information Pack – one year on


Last November the University of Sheffield orthoptists launched their online Nystagmus Information Pack to great acclaim. The pack was jointly funded by the University of Sheffield, the British and Irish … Continue reading Online Nystagmus Information Pack – one year on

Posted on November 7, 2018Author Sue RickettsCategories Information and SupportTags BIOS, sheffield university

Patient Information Day – Moorfields


Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to … Continue reading Patient Information Day – Moorfields

Posted on November 7, 2018Author Sue RickettsCategories Events, Information and SupportTags Moorfields Eye Hospital

How much do you know about nystagmus?


Try our fun quiz to find out how much you know about nystagmus and the work of the Nystagmus Network in just 2 minutes! Take the quiz

Posted on October 31, 2018Author Sue RickettsCategories Fundraising, Information and Support, Nystagmus is ... this ChristmasTags Nystagmus is ... this Christmas, quiz
Marie Turnbull

Calling Manchester!


We’re about to launch our very first local nystagmus network in Manchester. Your host, Nystagmus Network trustee, Marie Turnbull, is arranging a date, time and venue for your first get … Continue reading Calling Manchester!

Posted on October 30, 2018Author Sue RickettsCategories Events, Information and Support, nystagmus networksTags Local Groups, Manchester

Nystagmus Patient Information Day


The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for … Continue reading Nystagmus Patient Information Day

Posted on October 15, 2018Author Sue RickettsCategories Events, Information and Support, Living with nystagmusTags adults, Moorfields Eye Hospital, nystagmus, patient information

A new video on nystagmus


Published today as part of National Eye Health Week, a new YouTube video by Emily Davison, also known online as the Fashioneyesta, tells what nystagmus is and how it affects … Continue reading A new video on nystagmus

Posted on September 25, 2018Author Sue RickettsCategories Guest posts, Information and Support, Living with nystagmusTags Emily Davison, Fasioneyesta, nystagmus, video

Little Amber – there to help


Nystagmus Network’s Rachel, writes: Here at the Nystagmus Network we’re always looking for new opportunities for our members. Recently we came across a charity awarding grants to blind and partially … Continue reading Little Amber – there to help

Posted on September 19, 2018March 22, 2024Author Sue RickettsCategories Information and Support, Living with nystagmus, Parent storiesTags Amber Trust, music

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