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Category: Information and Support

What to expect from a visit to an Orthoptist


Orthoptists are trained specialists in diagnosing and providing non-surgical management of disorders of eye movements and associated vision defects. BIOS, the British and Irish Orthoptic Society, has produced a series … Continue reading What to expect from a visit to an Orthoptist

Posted on January 16, 2020January 16, 2020Author Sue RickettsCategories Information and SupportTags adults, BIOS, children, Orthoptist
Look UK logo.

Get university ready with LOOK UK


When  Saturday 08 February – 13:00 – 16:00 Where Thomas Pocklington Trust, Entrance D, Tavistock House South, Tavistock Square, London, WC1H 9LG LOOK UK have teamed up with London Vision to … Continue reading Get university ready with LOOK UK

Posted on January 15, 2020January 15, 2020Author Sue RickettsCategories Information and SupportTags Look UK, Thomas Pocklington Trust, university, visually impaired
A woman holds her head in her hands.

A new article on oscillopsia


Many people who have acquired nystagmus experience oscillopsia from time to time. This is where they see a moving image of the world around them, rather than a still one. … Continue reading A new article on oscillopsia

Posted on January 15, 2020January 15, 2020Author Sue RickettsCategories Information and SupportTags acquired nystagmus, diagnosis, oscillopsia, symptoms

Into employment with VI


Latest study shows improvements for young people with vision impairment entering employment but more needs to be done The latest results of a Longitudinal Transition Study published by the Vision … Continue reading Into employment with VI

Posted on January 10, 2020January 10, 2020Author Sue RickettsCategories Information and Support, Living with nystagmusTags employment, Thomas Pocklington Trust

Take part in sight services research


You can take part in a new study of services for people with impaired vision. Commissioned by major sight loss charities, the research aims to drive improvements to services. Phone … Continue reading Take part in sight services research

Posted on December 11, 2019December 11, 2019Author Sue RickettsCategories Information and Support, researchTags services for people with impaired vision, survey
A group of parents and Nystagmus Network volunteers.

Fingers crossed


Today at the Nystagmus Network we have our fingers firmly crossed. Why? Because we want to say a big THANK YOU to all the lovely national lottery players who helped … Continue reading Fingers crossed

Posted on October 29, 2019October 25, 2019Author Sue RickettsCategories Information and SupportTags education support, fingers crossed, National Lottery Community Fund, Parent Power

VICTA Parent Portal launches today


A brand new website signposting all the organisations available to help parents supporting a child with impaired vision launches today. Nystagmus Network is proud that our Education resource HUB features … Continue reading VICTA Parent Portal launches today

Posted on October 21, 2019October 18, 2019Author Sue RickettsCategories Education, Information and SupportTags information for parents, VICTA

#YouMadeItHappen – Delilah


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Delilah and her family offered the perfect story … Continue reading #YouMadeItHappen – Delilah

Posted on October 4, 2019October 17, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus, Nystagmus heroesTags #YouMadeItHappen
Roger stands in his garden.

#YouMadeItHappen – Roger


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Roger inspired us to write a brand new … Continue reading #YouMadeItHappen – Roger

Posted on October 4, 2019October 17, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus, Nystagmus heroesTags #YouMadeItHappen
Nadine smiles for the camera

#YouMadeItHappen – Nadine


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Nadine decided she didn’t want her little daughter … Continue reading #YouMadeItHappen – Nadine

Posted on October 4, 2019October 4, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus, Nystagmus heroesTags #YouMadeItHappen

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