We’re delighted to confirm another opportunity to ski with the Nystagmus Network and the Outspan Rebels VI ski team. On Sunday 26th August we will be running a two-hour ski lesson … Continue reading VI skiing this Bank Holiday weekend!
Category: Living with nystagmus
Guest post – Harry’s null point surgery decision
15 year old Harry has undergone the Anderson Kestenbaum procedure this summer. Parents often ask what null point surgery involves. Thorough consultation with the ophthalmologist and the surgical team are key. … Continue reading Guest post – Harry’s null point surgery decision
Introducing Harry’s story
This is Harry. He’s 15 years old. He has nystagmus and, as you can probably tell from the photo, he also has a fairly marked head turn associated with his … Continue reading Introducing Harry’s story
An inspirational student
Ella is a third year student at Nottingham Trent University. She just happens to have nystagmus. She is full of advice and inspiration for other young people with nystagmus. Hear … Continue reading An inspirational student
Visual impairment and mental health
Children aged between 8 and 11 years old who live with a visual impairment are three times more likely to develop a mental health problem than children with no visual … Continue reading Visual impairment and mental health
Advice from Glen on apps and phone tech
Glen is a VI blogger, friend and member of the Nystagmus Network. Our delegates enjoyed his extremely useful workshop at Open Day last year on building social networks. More recently, … Continue reading Advice from Glen on apps and phone tech
Celebrating National Sunglasses Day!
As photophobia is a frequent accompaniment to nystagmus and ocular albinism, we’re happy to join in a day of celebrating sunglasses and raising awareness of the importance of protecting your … Continue reading Celebrating National Sunglasses Day!
How amazing is Bradley
We couldn’t resist one more ‘amazing’ nystagmus success story. Not everyone with nystagmus can drive, but Bradley has turned driving into his philosophy on life. My name is Bradley. I’ve … Continue reading How amazing is Bradley
How amazing is Amanda
Amanda is a long time supporter of the Nystagmus Network UK and our unofficial US spokesperson. As a professional freelance writer, who also has nystagmus, she is well placed to … Continue reading How amazing is Amanda
How amazing is Gary?
Here’s Gary’s sporty nystagmus success story … Since 2014 I’ve been playing county cricket for Warwickshire Visually Impaired Cricket Club. The club comprises players of all ages (my shirt number … Continue reading How amazing is Gary?