I’m Charlie, I’m 14 years old and live in Lincoln. I live with my parents, my brother and sister. I’m currently studying for my GCSEs. I would love to do Maths, Psychology … Continue reading How amazing is Charlie?
Category: Living with nystagmus
How amazing is Matt?
Matt has nystagmus, but, as his Mum tells us, he is on the road to a stellar career. Matt is currently the director / choreographer for a production of Joseph … Continue reading How amazing is Matt?
How amazing is Katrina?
Katrina thinks she’s just a regular student who happens to have nystagmus – we think she’s an amazing nystagmus ambassador! Here’s Katrina’s nystagmus story … I am 19 years old. … Continue reading How amazing is Katrina?
How amazing is Mehak?
Growing up with nystagmus and albinism, I hated school and social interaction. I was always self-conscious and easily embarrassed that my weak eyesight, poor balance and hypersensitivity to sunlight made … Continue reading How amazing is Mehak?
How amazing is Suzanne?
I wanted to share my story to show people with nystagmus that it doesn’t have to stop you from fulfilling your dreams. I was born with nystagmus and my parents … Continue reading How amazing is Suzanne?
How amazing is Hannah?
When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got … Continue reading How amazing is Hannah?
Please vote for Ben
Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … … Continue reading Please vote for Ben
Nystagmus Network article published
To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published
How amazing are you?
Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last … Continue reading How amazing are you?
Nystagmus Awareness Day – for sports clubs
Calling all sports and athletics clubs – we want you to join us for ‘nystagmus in the open‘ on national and international Nystagmus Awareness Day on Wednesday 20 June. We … Continue reading Nystagmus Awareness Day – for sports clubs