Growing up with nystagmus and albinism, I hated school and social interaction. I was always self-conscious and easily embarrassed that my weak eyesight, poor balance and hypersensitivity to sunlight made … Continue reading How amazing is Mehak?
Category: Living with nystagmus
How amazing is Suzanne?
I wanted to share my story to show people with nystagmus that it doesn’t have to stop you from fulfilling your dreams. I was born with nystagmus and my parents … Continue reading How amazing is Suzanne?
How amazing is Hannah?
When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got … Continue reading How amazing is Hannah?
Please vote for Ben
Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … … Continue reading Please vote for Ben
Nystagmus Network article published
To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published
How amazing are you?
Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last … Continue reading How amazing are you?
Nystagmus Awareness Day – for sports clubs
Calling all sports and athletics clubs – we want you to join us for ‘nystagmus in the open‘ on national and international Nystagmus Awareness Day on Wednesday 20 June. We … Continue reading Nystagmus Awareness Day – for sports clubs
Nystagmus Awareness Day – for snow men!
Whilst we are all looking forward to the very first Nystagmus Awareness Day in the summer – on Wednesday 20 June – for those of you who miss the old … Continue reading Nystagmus Awareness Day – for snow men!
Do you know your ECLO?
If you or someone in your family has nystagmus, then make sure you meet your ECLO (Eye Clinic Liaison Officer). You can ask for them the next time you visit … Continue reading Do you know your ECLO?
Monday Focus on Facebook
Every Monday over on our Facebook page we focus on a particular nystagmus-related topic to get the week started with a great conversation. Topics we have covered so far have included … Continue reading Monday Focus on Facebook