Aged 18-55? Diagnosed with infantile nystagmus? Within travelling distance of Cardiff? Researchers at Cardiff University invite you to take part in an exciting research study looking into brain activity in … Continue reading Have a brain scan for research – recruiting now!
Category: Living with nystagmus
The Great Winter ‘nystagmus’ Get Together
Let’s banish the winter blues! Please add 7pm on Thursday 11 January to your calendar and join us for the Great Winter ‘nystagmus’ Get Together, inspired by the Jo Cox Foundation, where we … Continue reading The Great Winter ‘nystagmus’ Get Together
Understanding your experiences of nystagmus
You are invited to participate in a research study titled “Understanding the Experiences of Individuals with Eye Movement Disorders.” This study aims to explore the lived experiences, challenges, and perspectives … Continue reading Understanding your experiences of nystagmus
New low vision study calls for participants
Are you aged between 16 and 25?Have you accessed UK-based eye clinic and low vision services as a child or young adult?If so, a team at the University of Sheffield … Continue reading New low vision study calls for participants
Peter’s nystagmus story
Peter’s nystagmus story comes in the form of a poem. Thank you for sharing, Peter And the boy inside me still cries Something is wrong with my eyes. At birth … Continue reading Peter’s nystagmus story
DVLA consultation opens on fitness to drive
The Driver and Vehicle Licensing Agency (DVLA) is responsible for establishing whether a driving licence holder or applicant can meet the appropriate medical standards of fitness to drive. Medical enquiries … Continue reading DVLA consultation opens on fitness to drive
The big ‘nystagmus’ meet up – Manchester
Saturday 23 September, 10am to 3pm You are warmly invited to join Nystagmus Network staff and trustees for our next in person event – the big nystagmus meet up, Manchester. … Continue reading The big ‘nystagmus’ meet up – Manchester
Gemma’s nystagmus story
To help raise awareness and understanding of nystagmus, we;re sharing all your stories this Nystagmus Awareness Day. You can share your story here This is Gemma’s story … My name … Continue reading Gemma’s nystagmus story
Isabelle’s story
If you’d like to share your nystagmus story to help raise awareness we would love to hear from you. Share your story here This is Isabelle’s story … I was … Continue reading Isabelle’s story
Savannah’s nystagmus story
We are sharing your stories of nystagmus to help raise awareness of the condition. You can share your story here This is Savannah’s story Savannah’s Congenital Nystagmus was noticed by … Continue reading Savannah’s nystagmus story