SEND within a COVID-19 pandemic


In his presentation for the Nystagmus Network virtual Open Day 2020, Kevin McManamon, Senior Associate, Educational Team, Geldards LLP sets out the current position of SEND support in schools in England and Wales. To view Kevin’s and all the other presentations, please register here

Come along to the forum


As part of the Nystagmus Network virtual Open Day 2020 we will be hosting a series of zoom chats on Saturday 3 October. For parents There will be a virtual parents’ forum at 2pm. Share experiences, make new friends. This session will be led by Marie Travers, herself the parent of a child with nystagmus.  Please contact … Continue reading Come along to the forum

Visiting a High Street Optometrist


What happens when you’re discharged from the hospital eye clinic and need to visit an optician’s on the High Street? Can staff on the High Street really support you with your sight if you have nystagmus? Can they prescribe the right glasses or contact lenses for you? In their presentation for the Nystagmus Network virtual … Continue reading Visiting a High Street Optometrist

Sometimes we all need more marshmallows


In her presentation for the Nystagmus Network virtual Open Day 2020, Alison Blackman QTVI will talk about resilience and how to boost it. Resilience is the ability to overcome adversity, reduce stress and bounce back from setbacks. In her presentation, Alison explains how to boost resilience in young people with nystagmus. She talks about the … Continue reading Sometimes we all need more marshmallows

Chris addresses Acquired Nystagmus and Oscillopsia


Nystagmus researcher and clinician from the Royal Eye Infirmary, Plymouth, Professor Chris Harris, will be talking about the causes, potential treatment and his further research into Acquired Nystagmus and Oscillopsia at the Nystagmus Network virtual Open Day 2020. You can hear this and all the other presentations by registering now for the Nystagmus Network virtual … Continue reading Chris addresses Acquired Nystagmus and Oscillopsia

Can I tell you about nystagmus?


Can I tell you about Nystagmus? is a guide for friends, family and professionals by Nadine Neckles (illustrated By Vikas Upadhyay). Sue from the Nystagmus Network talks about Nadine’s book here. In this friendly guide, a girl called Amber explains all about her ‘dancing eyes,’ or nystagmus. Amber explains how children with nystagmus might need … Continue reading Can I tell you about nystagmus?

Night in with the Nystagmus Network


Virtual Open Day 2020, on Saturday 3 October, will close with A Night in with the Nystagmus Network, a virtual supper party for members and invited VIP guests.  This is a fabulous opportunity to meet, chat and network with nystagmus experts, guest speakers and presenters, supporters and members of the Nystagmus Network whilst enjoying a relaxed … Continue reading Night in with the Nystagmus Network

Booking now for Open Day 2020


The Nystagmus Network has a huge variety of presentations lined up for you at virtual Open Day 2020 on Saturday 3 October. Enjoy inspirational presentations, research updates and find all the support and information you need, all from the comfort of wherever you are. Everyone welcome! Due to social distancing rules still in place, we … Continue reading Booking now for Open Day 2020

Joanne sings for the Rising Phoenix


The voice of Nystagmus Network member, acclaimed soprano and Open Day 2020 keynote speaker, Joanne Roughton-Arnold features in the inspirational documentary, Rising Phoenix, a Netflix production charting the history of the Paralympic Games through the personal stories of some of the sports stars themselves.  Described by Daniel Pemberton, the film’s musical director as “an incredibly … Continue reading Joanne sings for the Rising Phoenix

Night in with the Nystagmus Network


The Nystagmus Network virtual Open Day takes place on 3 October, with presentations, workshops, forums and fun for everyone. The day, full of support and information and everything nystagmus, draws to a close in the evening with the spectacular Night in with the Nystagmus Network, a virtual supper party with an amazing guest speaker. Night … Continue reading Night in with the Nystagmus Network