Posts – Nystagmus Network

Florence wears glasses, smiles for the camera and holds up a poster she has designed.

Aunt Rhoda’s gift to nystagmus research

In 2023 the Nystagmus Network received a legacy gift from the late Mrs Rhoda Clarke in the sum of £32,114. 71 The gift was made in the name of Mrs … Continue reading Aunt Rhoda’s gift to nystagmus research

Members of the Nystagmus Network team wearing their tropical blue T-shirts hold up a banner.

Trustee vacancies

Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus community in all … Continue reading Trustee vacancies

Help create a VI and HI friendly website

The University of Strathclyde are recruiting participants for a study on assistive technologies for older people with Deafness or Visual Impairment. They are looking for up 50 participants in total: Up … Continue reading Help create a VI and HI friendly website

Nystagmus Network Trustee Paul Rose and Dr Matteo Rizzi from the UCL Institute of Ophthalmology, looking at images captured with their high-speed camera.

Nystagmus Network visits pioneering research in London

The Nystagmus Network is committed to supporting groundbreaking research, from understanding the root causes of nystagmus through to managing and treating the condition. Recently our trustees, Paul Rose and Harshal … Continue reading Nystagmus Network visits pioneering research in London

Calling people living with nystagmus in Scotland who are over 65

Are you an older adult living with visual impairment? We are a team of researchers at the University of Strathclyde who want to explore your experiences of travelling from home … Continue reading Calling people living with nystagmus in Scotland who are over 65

Take part in research at Charing Cross Hospital, London

Sarah Hösli, Honorary Senior Research Fellow with the Brain and Vestibular Group at Imperial College London, part of Dr Barry Seemungal’s team, invites study participants. She writes: “We are currently … Continue reading Take part in research at Charing Cross Hospital, London

A child wearing glasses is holding up a poster she has made.

Nystagmus Network trustees publish their annual report for 2023

Through 2023 the charity has gone from strength to strength in delivering support, funding research, and raising awareness. As we enter our Ruby anniversary year trustees would like to thank again … Continue reading Nystagmus Network trustees publish their annual report for 2023

Nystagmus Network members hold up their voting cards.

Notice of the Nystagmus Network AGM 2023

Notice is hereby given that the Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online on Thursday 27 June … Continue reading Notice of the Nystagmus Network AGM 2023

Two young children in party clothes stand beside a frosted cake.

Onyeka’s 1984 Story

This is a photo of my elder brother (Tony) and me at my first birthday celebration in Nigeria. Report has it that he desperately tried to steal the show but … Continue reading Onyeka’s 1984 Story

A poster with all the details of this research participation opportunity, as given in the accompanying text article.

Nystagmus research participation opportunity

Perceptual Learning for Nystagmus We are delighted to offer people who have nystagmus the opportunity to take part in an exciting new research study at the University of Plymouth, in … Continue reading Nystagmus research participation opportunity