We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 1: Will there ever be a cure for nystagmus? Answer: (JS) Nystagmus is the result of a lot of different things going wrong. … Continue reading Your nystagmus research questions answered
Nystagmus Network staff team members, Sue, Sara and Debbie are all adjusting to the current pandemic and a slightly different way of doing things. Though they all usually work from home, some things have changed. Debbie is currently furloughed and spending important time at home looking after her family and home schooling her daughters. Sara … Continue reading Nystagmus Network staff under lockdown
This Saturday at 7pm Thank you to everyone who took part in the very first Nystagmus Network virtual quiz night last week. There may have been a few technical hitches, but it was certainly fun, got us all together and was just a little bit competitive! Congratulations to Sara, Nick and Rogier for walking away … Continue reading Join our virtual quiz night
A great way to make your time outdoors fun with the children is to go on a bear hunt. Inspired by the lovely Michael Rosen’s fabulous book “We’re going on a bear hunt” people all over the world are placing teddy bears in their windows so that children can spot them when they’re out walking … Continue reading Have you been on a bear hunt yet?
Parent carer voices are essential to help shape the services they need for their children and young people. The East Sussex Parent Carer Forum would like you to get involved.
Fight for Sight needs your help as part of a ground-breaking survey into the experience of living with sight loss or an eye condition. By taking part in the survey you will be helping Fight for Sight to put sight loss on the map and help increase the amount of money going into eye research. … Continue reading Fight for Sight survey on eye conditions and sight loss
from everyone at the Nystagmus Network Image by Free-Photos from Pixabay
Follow Mike’s wiggly progress on his Facebook page, here and donate to his Nystagmus Network fundraising page, here. A sight-impaired young Englishman, Mike Larcombe, is preparing to trek across New Zealand to raise money for a complex eye condition that blurs his vision. Mike has nystagmus, which he refers to as “wiggly eyes” and so … Continue reading Trekking through Middle Earth for nystagmus research
Parent Power, funded by the National Lottery Community Fund SORRY – BOOKINGS NOW CLOSED. The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue: DoubleTree by Hilton, Cambridge City Centre Date: Saturday 25 January Time: 9.30am to 3pm The aim of the project is to empower parents and carers … Continue reading Parent Power comes to Cambridge
Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with someone in Germany. If your son or daughter would like to send and receive postcards and letters, please complete the form below. Through our partnership … Continue reading Would your child like a German pen friend?