Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with … Continue reading Would your child like a German pen friend?
Category: Posts
13% of MS patients have acquired nystagmus
In a report presented this summer, 15 of a sample of 116 patients with Multiple Sclerosis were found to have Acquired Nystagmus. Ocular manifestations often present first in multiple sclerosis … Continue reading 13% of MS patients have acquired nystagmus
Are you a digital champion?
Do you have the digital know how to take the Nystagmus Network up to the next level? The Nystagmus Network is keen to recruit a new trustee with the right skills set. … Continue reading Are you a digital champion?
And the winner is …
The results are in from our Facebook and Twitter polls and we can finally announce the name of our fabulous ‘Nystagmus is …’ competition winner – drum roll, please … … Continue reading And the winner is …
Mike’s wiggly walk – video update
Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a … Continue reading Mike’s wiggly walk – video update
We publish our annual review 2018
Trustees are pleased to announce that the 2018 Annual Review of the Nystagmus Network is now published on the Charities Commission website. Chairman of the charity, Richard Wilson OBE, says: … Continue reading We publish our annual review 2018
How amazing is Sonny-John?
In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” On Nystagmus Awareness Day itself a … Continue reading How amazing is Sonny-John?
How amazing is Jane?
In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Jane believes that having a sense … Continue reading How amazing is Jane?
How amazing is Alfie?
In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” To his parents, Alfie truly is … Continue reading How amazing is Alfie?
Our wobbly week competition
It’s wobbly week! And it’s Nystagmus Awareness Day this Thursday, 20 June. We want to raise as much awareness of nystagmus as possible and make sure that everyone has a … Continue reading Our wobbly week competition