Nystagmus Network staff team members, Sue, Sara and Debbie are all adjusting to the current pandemic and a slightly different way of doing things. Though they all usually work from … Continue reading Nystagmus Network staff under lockdown
Category: Posts
Join our virtual quiz night
This Saturday at 7pm Thank you to everyone who took part in the very first Nystagmus Network virtual quiz night last week. There may have been a few technical hitches, … Continue reading Join our virtual quiz night
Have you been on a bear hunt yet?
A great way to make your time outdoors fun with the children is to go on a bear hunt. Inspired by the lovely Michael Rosen’s fabulous book “We’re going on … Continue reading Have you been on a bear hunt yet?
East Sussex Parent Carer Forum – get involved
Parent carer voices are essential to help shape the services they need for their children and young people. The East Sussex Parent Carer Forum would like you to get involved.
Fight for Sight survey on eye conditions and sight loss
Fight for Sight needs your help as part of a ground-breaking survey into the experience of living with sight loss or an eye condition. By taking part in the survey … Continue reading Fight for Sight survey on eye conditions and sight loss
Happy New Year
from everyone at the Nystagmus Network Image by Free-Photos from Pixabay
Trekking through Middle Earth for nystagmus research
Follow Mike’s wiggly progress on his Facebook page, here and donate to his Nystagmus Network fundraising page, here. A sight-impaired young Englishman, Mike Larcombe, is preparing to trek across New … Continue reading Trekking through Middle Earth for nystagmus research
Would your child like a German pen friend?
Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with … Continue reading Would your child like a German pen friend?
13% of MS patients have acquired nystagmus
In a report presented this summer, 15 of a sample of 116 patients with Multiple Sclerosis were found to have Acquired Nystagmus. Ocular manifestations often present first in multiple sclerosis … Continue reading 13% of MS patients have acquired nystagmus
Are you a digital champion?
Do you have the digital know how to take the Nystagmus Network up to the next level? The Nystagmus Network is keen to recruit a new trustee with the right skills set. … Continue reading Are you a digital champion?