In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?”
To his parents, Alfie truly is AMAZING.
Here’s what they have to say about him …
“As well as having nystagmus, Alfie also has FEVR, a progressive eye condition that affects only 1 in 100,000. He is blind in one eye, with 6/60 vision in the other eye.
‘It was always Alfie’s dream to go to grammar school, once he found out that was where the ‘clever boys’ went.
‘Alfie recently passed his 11+ and has gained a grammar school place. Out of over 5,000 children who sat the test in Essex, he was the only one with VI. Overall he came within the top 2% of all scores and is going to a school with only 120 in catchment places on offer.
‘Alfie also passed ski school in France again this year with flying colours, with the same instructor telling him he should apply to start training to be a Paralympian skier.
‘Alfie hasn’t let anything stand in his way and has achieved what he set out to do. Now he wants to study to become an Eye Doctor. To say we are proud is an understatement.”
If you’d like to share your amazing nystagmus story, please contact us today. To help the Nystagmus Network support even more people to reach their amazing potential, please consider making a donation. Thank you.