How amazing is Jane?

In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?”

Jane believes that having a sense of humour really helps. Here she tells her story:

“My name is Jane and I have idiopathic, congenital nystagmus. My wobbly eyes have given me challenges, but have also made me determined and given me a sense of humour.

‘I have a degree in Library and Information Management and have worked in libraries for over 20 years.

‘I have never driven, but my experiences on public transport have given me plenty to talk about.

‘I have 2 beautiful, fabulous children. My son always introduces me by saying “this is my Mum and she is a bit blind”. 

‘My cane is called Fred and he gives me independence. He’s also an excellent aid to dusting if I tie a cloth on him. I once used him to rescue an escaping helium balloon and cheated on my brother’s Easter egg hunt by poking eggs from high places.

‘So like any person, I get on with it and smile. Where there’s a will there’s a way and I get by with a little help from my friends and family.”

If you’d like to share your amazing nystagmus story, please contact us today. To help the Nystagmus Network support even more people to reach their amazing potential, please consider making a donation. Thank you.

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