Stay up to date with all our latest news, stories and features in one place.
Nystagmus Network wins £1,000 Movement for Good award The Nystagmus Network has won a £1,000 Movement for Good award from Ecclesiastical Insurance Group thanks to nominations from the public. The … Continue reading Nystagmus Network wins £1,000 Movement for Good award
The Nystagmus Network charity name and logo are now Registered Trade Marks thanks to the advice and support of our friends Simon, Sarah, Akber and Ella at the London law … Continue reading Nystagmus Network® Trade Marks
I was born with CN and for the most part consider myself to be lucky compared to many in our group. Service to others has been a significant part of … Continue reading How amazing is Edwin?
Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents … Continue reading How amazing is Wyatt?
I am Grayson and I am 5 on 18 June. I have Ocular Albinism and Nystagmus. When I started school in September, I was very scared and very nervous and was … Continue reading How amazing is Grayson?
My name is Poppy. I’m 11 years old. I was diagnosed with nystagmus when I was 2 months old. I never allow my nystagmus to hold me back. I love … Continue reading How amazing is Poppy?
Zoom celebration for International Albinism Awareness Day on 13 June 2021 Guest post from Roselle Potts, Chair of the Albinism Fellowship To mark International Albinism Awareness Day* on 13 June … Continue reading Albinism Awareness Day
Fight for Sight and Nystagmus Network are funding research into the impact of glare in infantile nystagmus and albinism in the hope of improving outcomes for people with the condition. … Continue reading Two new nystagmus research projects funded
Katrina did well at school, has worked hard throughout the pandemic and keeps herself fit with clubbercise. She says: I have had congenital nystagmus all my life and I have … Continue reading How amazing is Katrina?
Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story … Continue reading How amazing is Tim?
