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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Simon Riggs after skydive

Fancy a skydive for the Nystagmus Network?


Skydiving is an extreme sport and not for the faint hearted, but it’s the perfect opportunity to ask your friends and family to sponsor you! In 2018, Simon raised over … Continue reading Fancy a skydive for the Nystagmus Network?

Posted on February 4, 2022February 4, 2022Author Sue RickettsCategories Fundraising, Nystagmus heroesTags fundraising, nystagmus, nystagmus network, skydiving
A very young child sitting with a book.

Predicting the sight of an infant with nystagmus


Thanks to recent nystagmus research work, there is now an answer to many a parent’s question ‘How well will my child be able to see?’ A team of researchers has … Continue reading Predicting the sight of an infant with nystagmus

Posted on February 4, 2022February 4, 2022Author Sue RickettsCategories researchTags foveal grading system, nystagmus, nystagmus network, nystagmus research
The logo of Alliance

The Nystagmus Network joins the Alliance


The Nystagmus Network is thrilled to be part of ALLIANCE, the network for health and social care organisations in Scotland. In this video, Sue introduces the Nystagmus Network as a … Continue reading The Nystagmus Network joins the Alliance

Posted on February 4, 2022February 4, 2022Author Sue RickettsCategories Charity highlights, NewsTags Alliance, health and social care, nystagmus, nystagmus network, partnerships
A tennis player about to serve the ball

Have a go at VI sport


Sports, especially those involving fast moving balls, can be a challenge if you have nystagmus, but British Blind Sport offer lots of opportunities for you to have a go and … Continue reading Have a go at VI sport

Posted on February 4, 2022February 4, 2022Author Sue RickettsCategories Living with nystagmusTags British Blind Sport, Have a go, nystagmus, nystagmus network
A banner asking our supporters to join our weather lottery.

Are you a winner?


We love to celebrate with you when you have a win on the Nystagmus Network weather lottery. Join today and, for just £1 per week, you will have the chance … Continue reading Are you a winner?

Posted on February 4, 2022February 4, 2022Author Sue RickettsCategories FundraisingTags nystagmus, nystagmus network, Nystagmus Network Weather Lottery
Nystagmus Network members hold up their voting cards.

Thinking of becoming a member?


There’s nothing quite like the feeling of belonging, of knowing that you’re part of a wider virtual nystagmus community and among friends, all working for the same goals as you. … Continue reading Thinking of becoming a member?

Posted on February 4, 2022February 4, 2022Author Sue RickettsCategories Members onlyTags membership, nystagmus, nystagmus network
a banner promoting easyfundraising, asking our supporters to help us reach our target this year.

Thank you to our easyfundraisers


Thank you Fiona, Jackie, Jane, Lyndsay, Rachel, Sofie, Sue, Tim and all our other lovely supporters for raising donations for the Nystagmus Network with easyfundraising! If you haven’t signed up … Continue reading Thank you to our easyfundraisers

Posted on February 4, 2022February 4, 2022Author Sue RickettsCategories FundraisingTags Easyfundraising, fundraising, nystagmus, nystagmus network, Thank you
Part of the ultra challenge series logo

Join our Easter Challenge and get fit for the summer


Take on a 50 km Ultra or a historic 25km – and make it an active Easter! From the Windsor Racecourse base camp 1500 adventurers will head out on looped … Continue reading Join our Easter Challenge and get fit for the summer

Posted on February 4, 2022February 4, 2022Author Sue RickettsCategories Fundraising, Nystagmus heroesTags fundraising, nystagmus, nystagmus network, Ultra Challenges
The Nystagmus Network logo and the words 'parent power'

Parent Power this February


Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is delighted to be able to offer parents and carers of children and young people with … Continue reading Parent Power this February

Posted on February 4, 2022Author Sue RickettsCategories Education, Events, Information and SupportTags IPSEA, nystagmus, nystagmus network, Parent Power, parents and carers, SEND

Run the Royal Parks


The Royal Parks Half Marathon is a spectacular run through central London – the first and only one of its kind. The stunning 13.1 mile route takes in the capital’s … Continue reading Run the Royal Parks

Posted on January 19, 2022January 19, 2022Author Sue RickettsCategories Fundraising, Nystagmus heroes, PostsTags nystagmus, nystagmus network, Royal Parks Half Marathon

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