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Nystagmus Network

Supporting people living with nystagmus

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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

We publish our annual review 2018


Trustees are pleased to announce that the 2018 Annual Review of the Nystagmus Network is now published on the Charities Commission website. Chairman of the charity, Richard Wilson OBE, says: … Continue reading We publish our annual review 2018

Posted on June 24, 2019June 24, 2019Author Sue RickettsCategories PostsTags Annual review 2018
The Nystagmus Network eye logo and the words Nystagmus Awareness Day 20 June

Thank you – you are amazing


As ‘wobbly week’ draws to a close for another year we just wanted to thank everyone for making Nystagmus Awareness day 2019 such a success. Thank you to our fundraisers, … Continue reading Thank you – you are amazing

Posted on June 24, 2019June 24, 2019Author Sue RickettsCategories Charity highlights, Nystagmus Awareness Day, Thank yousTags amazing nystagmus success stories, How amazing are you?

How amazing is Aneeba?


Thank you for sending us all your nystagmus success stories. We just love to read them and we know they bring hope and inspiration to so many people. Today we … Continue reading How amazing is Aneeba?

Posted on June 21, 2019June 21, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, How amazing are you?

How amazing is Ellen?


Throughout June we’ve been celebrating your nystagmus success stories in our campaign ‘How amazing are you?’ Today, Ellen shares her story: “My name is Ellen and I’m 32 years old. I’m … Continue reading How amazing is Ellen?

Posted on June 21, 2019June 21, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, How amazing are you?

Trustees discuss Parent Power with Marsha


On Thursday 20 June, Nystagmus Awareness Day a group of Nystagmus Network trustees met with Marsha de Cordova MP in Parliament. Earlier that morning, Marsha had tweeted her own Nystagmus … Continue reading Trustees discuss Parent Power with Marsha

Posted on June 21, 2019June 21, 2019Author Sue RickettsCategories Charity highlights, Education, Nystagmus Awareness Day, Nystagmus heroesTags Marsha de Cordova

How amazing is Sonny-John?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” On Nystagmus Awareness Day itself a … Continue reading How amazing is Sonny-John?

Posted on June 20, 2019June 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?
Mike wears his Nystagmus Network T short and smiles for the camera

Mike’s wiggly walk


On Nystagmus Awareness Day we are proud and delighted to announce that our newest supporter, Mike plans to walk the length of New Zealand to help find a cure for … Continue reading Mike’s wiggly walk

Posted on June 20, 2019June 19, 2019Author Sue RickettsCategories Charity highlights, FundraisingTags Walk for Wiggly Eyes

How amazing is Jane?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Jane believes that having a sense … Continue reading How amazing is Jane?

Posted on June 19, 2019June 19, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Alfie?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” To his parents, Alfie truly is … Continue reading How amazing is Alfie?

Posted on June 18, 2019June 18, 2019Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, PostsTags amazing nystagmus success stories, How amazing are you?

How amazing is Claire?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” Claire is doing a fundraising tandem … Continue reading How amazing is Claire?

Posted on June 17, 2019June 17, 2019Author Sue RickettsCategories Nystagmus Awareness Day, Nystagmus heroesTags amazing nystagmus success stories, How amazing are you?

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