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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

The nystagmus research HUB is back!


Launched at Open Day 2018, the nystagmus research HUB will back back at Open Day 2019, giving delegates the opportunity to chat one to one with the UK’s leading nystagmus … Continue reading The nystagmus research HUB is back!

Posted on May 24, 2019September 12, 2019Author Sue RickettsCategories Open Day 2019Tags nystagmus research, Open Day 2019, research HUB

Acquired nystagmus, MS and driving


An article recently published online by Everyday Health, discusses the effects of acquired nystagmus on an individual’s ability to drive. The author is an American citizen, living in New York … Continue reading Acquired nystagmus, MS and driving

Posted on May 24, 2019May 24, 2019Author Sue RickettsCategories Living with nystagmusTags acquired nystagmus, driving and nystagmus, multiple sclerosis, Open Day 2019

Collaborative funding to tackle sight loss


Hear Dr Rubina Ahmed from Fight for sight and Sue from Nystagmus Network talking about their brand new jointly funded nystagmus research grant in this excerpt from RNIB Connect Radio. … Continue reading Collaborative funding to tackle sight loss

Posted on May 22, 2019May 22, 2019Author Sue RickettsCategories Charity highlights, researchTags Fight for Sight, nystagmus research, RNIB Connect Radio

Are you going to LOOKfest?


July 26-29 2019 Kentchurch, Herefordshire Fun for all the family! From toddlers to teens, to the truly ancient, there is something for everyone! Parent / Carer ticket: £55.00 Child ticket (3-18 … Continue reading Are you going to LOOKfest?

Posted on May 21, 2019May 21, 2019Author Sue RickettsCategories EventsTags Look Fest, Look UK
The Nystagmus Network eye logo and the words Nystagmus Awareness Day 20 June

How amazing are you?


Don’t forget that, throughout June, in the run up to Nystagmus Awareness Day 2019, we’ll be sharing all your amazing nystagmus stories. So, if you’d like us to feature your … Continue reading How amazing are you?

Posted on May 20, 2019May 20, 2019Author Sue RickettsCategories Charity highlights, Nystagmus Awareness DayTags amazing, Nystagmus Awareness Day

A nystagmus care pathway


The notes below are taken from an article recently published in the British and Irish Othoptic Journal, BIOJ. Arguments for the Adoption of a Nystagmus Care Pathway Authors: Christopher M … Continue reading A nystagmus care pathway

Posted on May 20, 2019May 20, 2019Author Sue RickettsCategories Information and SupportTags BIOJ, Chris Harris, Nystagmus Care Pathway

ANUK conference 2019


Conference 2019 Learn about aniridia and related conditions from each other, and professionals in medical and related fields. Find out how those affected by aniridia deal with it every day. … Continue reading ANUK conference 2019

Posted on May 16, 2019May 16, 2019Author Sue RickettsCategories Events, Guest posts, PostsTags aniridia, ANUK

Merton info and family fun day


INFORMATION and FAMILY FUN DAY Venue: MertonVision, The Guardian Centre, 67 Clarendon Road, Colliers Wood, London, SW19 2DX Date: Saturday 29th June 2019 Time: 10.30am – 3.30pm Travel: Nearest Tube: … Continue reading Merton info and family fun day

Posted on May 14, 2019May 14, 2019Author Sue RickettsCategories EventsTags Guide Dogs, Merton Vision

Want to be part of a world record attempt?


On the 3 June 2019, Orthoptics (School of Health Science) at The University of Liverpool will be celebrating World Orthoptics Day by attempting to break the current world record for the “Largest Human Image of an Eye”. … Continue reading Want to be part of a world record attempt?

Posted on May 14, 2019May 14, 2019Author Sue RickettsCategories Events

Call for applications


The call for the joint Nystagmus Network / Fight for Sight £250k award to undertake a three year nystagmus research project, is now open. Vivien Jones, chair of the Nystagmus … Continue reading Call for applications

Posted on May 9, 2019May 9, 2019Author Sue RickettsCategories researchTags Fight for Sight, nystagmus research

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