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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Jay Self wearing scrubs.

Does albinism protect against AMD?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of … Continue reading Does albinism protect against AMD?

Posted on September 3, 2018June 26, 2019Author Sue RickettsCategories Posts, researchTags albinism, AMD, ocular albinism, University of Southampton

Vicky and Claire show amazing support


Vicky and Claire are both trustees of the Nystagmus Network. That’s not all they have in common! On 23 September they will both be scaling down the Olympic Park Orbit … Continue reading Vicky and Claire show amazing support

Posted on August 31, 2018Author Sue RickettsCategories Fundraising, researchTags abseil, Moorfields Eye Hospital, UCL

They did it!


We’ve just heard that James and his little brother, Thomas, have successfully completed their summer fundraising challenge to raise a phenomenal £677 for two charities. James (8) and Thomas (5) … Continue reading They did it!

Posted on August 31, 2018Author Sue RickettsCategories FundraisingTags chromosome 18q-, nystagmus

Myopia – a worrying trend


The College of Optometrists have recently published this info-graphic to highlight the rise in cases of myopia, the causes and how it can be prevented or treated.

Posted on August 30, 2018Author Sue RickettsCategories NewsTags College of Optometrists, myopia

Try VR at Open Day


The Nystagmus Network is currently funding pioneering research at the University of Sheffield which could really help improve the quality of life of people who acquire nystagmus in adulthood. Acquired … Continue reading Try VR at Open Day

Posted on August 30, 2018Author Sue RickettsCategories Living with nystagmus, Open Day 2018, researchTags acquired nystagmus, Dr Helen Griffiths, sheffield university, VR

Children can try programming


A research associate at the UCL Interaction Centre is working on a project that seeks to develop an accessible toolkit to enable children with different visual abilities to write basic … Continue reading Children can try programming

Posted on August 28, 2018Author Sue RickettsCategories researchTags programming, UCL

Children’s health: why vision matters


When an infant is diagnosed with nystagmus, it’s very important to ensure that the child continues to have regular sight tests and check ups to make sure that other problems … Continue reading Children’s health: why vision matters

Posted on August 28, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags Association of Optometrists, children, sight testing, UK Vision Strategy
Jay Self wearing scrubs.

Researchers study whether albinism could protect against AMD


PRESS RELEASE ISSUED BY UNIVERSITY HOSPITAL SOUTHAMPTON NHS FOUNDATION TRUST 23 August 2018 Researchers in Southampton are in the early stages of a pioneering study which aims to discover if … Continue reading Researchers study whether albinism could protect against AMD

Posted on August 23, 2018Author Sue RickettsCategories researchTags albinism, AMD, Mr Jay Self, University of Southampton
Harry recovering.

Guest post – Harry’s recovery from surgery continues


Harry and his family continue their post surgery journey. Ian writes: On day 7 after the op Harry is able to open his eyes for longer periods, the blurry vision … Continue reading Guest post – Harry’s recovery from surgery continues

Posted on August 22, 2018Author Sue RickettsCategories Guest posts, Living with nystagmus, Parent storiesTags Anderson Kestenbaum procedure, null point Surgery

Guest post – one week after Harry’s null point surgery


Harry has undergone the Anderson Kestenbaum procedure this summer to address his marked head turn. His Dad, Ian, has asked us to share their experiences. A few days after the operation … Continue reading Guest post – one week after Harry’s null point surgery

Posted on August 22, 2018Author Sue RickettsCategories Guest posts, Living with nystagmus, Parent storiesTags Anderson Kestenbaum procedure, null point Surgery

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