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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Little Amber – there to help


Nystagmus Network’s Rachel, writes: Here at the Nystagmus Network we’re always looking for new opportunities for our members. Recently we came across a charity awarding grants to blind and partially … Continue reading Little Amber – there to help

Posted on September 19, 2018March 22, 2024Author Sue RickettsCategories Information and Support, Living with nystagmus, Parent storiesTags Amber Trust, music

Publication update


With thanks to Mike Hughes, our volunteer benefits adviser, who has today supplied a newly updated edition of his booklet on nystagmus and benefits. The new version, taking into account … Continue reading Publication update

Posted on September 19, 2018Author Sue RickettsCategories Events, Information and SupportTags benefits, DLA, PIP

Well done, Bronagh and Susan!


Last Sunday Bronagh and Susan completed the Spartan Scotland 2018 challenge for the Nystagmus Network. That’s a lot of running, a lot of obstacles and an awful lot of mud. … Continue reading Well done, Bronagh and Susan!

Posted on September 18, 2018Author Sue RickettsCategories Fundraising, Thank yousTags Spartan Scotland challenge

Another Nystagmus Network first!


Thanks to Paul Bowry and his family, the Nystagmus Network will be enjoying our first ever fundraising Car Boot Sale on Tuesday 18 September. Paul has been running boot fairs … Continue reading Another Nystagmus Network first!

Posted on September 14, 2018September 14, 2018Author Sue RickettsCategories Charity highlights, Events, FundraisingTags car boot fair, Essex

#notyourusualnightout


Here’s a fundraising opportunity with a difference! You can choose to cycle a 50k or 100k route around London, Bristol, Glasgow or Liverpool AT NIGHT with Nightrider 2019. Provided you … Continue reading #notyourusualnightout

Posted on September 13, 2018Author Sue RickettsCategories FundraisingTags Bristol, Glasgow, Liverpool, London, m, Nightrider

Nystagmus acquired after a stroke?


Professor Fiona Rowe from the Institute of Psychology, Health and Society at the University of Liverpool is currently seeking patients to take part in an online anonymous questionnaire about eye … Continue reading Nystagmus acquired after a stroke?

Posted on September 12, 2018Author Sue RickettsCategories researchTags acquired nystagmus, Professor Fiona Rowe, questionnaire, The University of Liverpool

Don’t forget us, please!


As national ‘Remember a Charity Week’ begins, the Nystagmus Network would like to make a plea to all our members and supporters to consider remembering us in your wills. We … Continue reading Don’t forget us, please!

Posted on September 10, 2018Author Sue RickettsCategories Legacies and gifts in willsTags gifts in wills, legacies, nystagmus, nystagmus research

VI skiing this October


Posted on September 7, 2018Author Sue RickettsCategories EventsTags Outspan Rebels VI ski team, skiing

Matt is joining the abseil


Matthew Dawson will be abseiling down the UK’s allest piece of public art on 23 September to raise much needed funding for nystagmus research at Moorfields and UCL. He is … Continue reading Matt is joining the abseil

Posted on September 7, 2018Author Sue RickettsCategories FundraisingTags abseil, Moorfields Eye Hospital, research, UCL
Harry and his sister ready for school.

Guest post: Harry’s back at school!


Over the summer holidays we followed Harry’s progress as he underwent the Anderson Kestenbaum procedure to address the head turn associated with his nullpoint. Today we hear from Harry’s Dad, … Continue reading Guest post: Harry’s back at school!

Posted on September 7, 2018Author Sue RickettsCategories Guest posts, Information and Support, Living with nystagmus, Parent storiesTags Anderson Kestenbaum procedure, null point Surgery

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