Josh can’t see rain – can you? Josh was born with nystagmus and ocular albinism, but he hasn’t let that hold him back. Josh has been a primary school teacher … Continue reading Thank you, Josh
Tag: nystagmus network
Thank you, Jaina
Jaina joined the Nystagmus Network team in August 2020 as an intern, spending some time to gain experience of working in a small charity. Jaina was hugely helpful in the … Continue reading Thank you, Jaina
Thank you, Emma
For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. … Continue reading Thank you, Emma
Digital Nystagmus Network Christmas cards
Bring a little joy to far away friends and family this festive season with a Nystagmus Network digital Christmas card. 6 designs to choose from. Digital Christmas cards here
Thank you, Claire
Both Claire and her young son, Zac have nystagmus. In 2019 Claire decided she was going to do a sky dive for the Nystagmus Network. Postponements because of the weather … Continue reading Thank you, Claire
Living with Acquired Nystagmus and Oscillopsia?
The Nystagmus Network runs a virtual support group where people living with Acquired Nystagmus and/or Oscillopsia chat together on email and on zoom to share their experiences and try to find answers together. … Continue reading Living with Acquired Nystagmus and Oscillopsia?
Gene Vision launches
Gene Vision launched to support those diagnosed with genetic eye diseases London, 01 December 2020 A new website, Gene Vision, has launched today, developed by Professor Mariya Moosajee and Dr … Continue reading Gene Vision launches
New nystagmus research
We are excited to announce the start of a new research study into nystagmus The aim of the study is to gather evidence about people’s perceptions of nystagmus. The results … Continue reading New nystagmus research
Do you have Acquired Nystagmus or Oscillopsia?
We need you! The Nystagmus Network is supporting Professor Chris Harris and his team at the Royal Eye Hospital, Plymouth to investigate further Acquired Nystagmus and Oscillopsia. If you have … Continue reading Do you have Acquired Nystagmus or Oscillopsia?
Could you be a Nystagmus Network trustee?
Trustees play an essential role in the running of the Nystagmus Network. Whilst it is not a role to be taken on lightly and may be demanding of time and … Continue reading Could you be a Nystagmus Network trustee?