nystagmus network – Page 5 – Nystagmus Network

A young child wearing a purple paper crown and glasses is cuddling a blue toy and smiling for the camera.

Ruby’s Story

When Ruby was 9 months old I noticed one of her eyes shaking, which prompted me to visit our local optician. They informed me that they didn’t treat children that … Continue reading Ruby’s Story

At 12 years old, I was preparing for my first summer Scout camp in Guernsey, which required a 10-hour ferry ride from Weymouth, marking my first time leaving mainland UK. … Continue reading Peter’s 1984 Story

Ava holds her 'player of the week' certificate for the camera.

Ava

Ava was born with congenital nystagmus. She loves rugby and swimming. She’s full of life and lets nothing get in her way.

Sue weas a pink polo shirt and carries a beach bag, sunglasses and her shoes. She is on a beach.

Sue’s 1984 Story

In 1984 I had never heard of nystagmus and had no connection with the condition at all. It was for me a very momentous year, though, because it was the … Continue reading Sue’s 1984 Story

Two young children in party clothes stand beside a frosted cake.

Onyeka’s 1984 Story

This is a photo of my elder brother (Tony) and me at my first birthday celebration in Nigeria. Report has it that he desperately tried to steal the show but … Continue reading Onyeka’s 1984 Story

A blue and green striped egg with the words Nystagmus Network and the number 1 on it in white.

Join our virtual Easter Egg Hunt

Ready to hop into some Easter fun? Join our virtual Easter Egg Hunt through our website to find hidden eggseach with a letter on it to be discovered! Collect … Continue reading Join our virtual Easter Egg Hunt

A poster about the Cascade research project. Details in the blog post.

Take part in the Cascade project

A research team at Anglia Ruskin University is recruiting parents to take part in their latest research project. Here’s the team to introduce it: We’d like to let you know … Continue reading Take part in the Cascade project

A stack of pancakses on a plate topped with butter, strawberries and blueberries.

Join us for a flipping fantastic celebration

Calling all pancake enthusiasts and creative cooks! It’s time to dust off your spatulas and put your culinary skills to the test because the Nystagmus Network is hosting an exciting … Continue reading Join us for a flipping fantastic celebration

Marsha and George stand together in a parliamentary council chamber.

George gives his oral evidence to the APPG

George has not yet completed his first month as an intern Information Support Officer with the Nystagmus Network. This week he was given a very special assignment, to give oral … Continue reading George gives his oral evidence to the APPG

A flyer for this research participation opportunity giving the same information as in the blog post and including a thumbnail image of Katherine.

Have a brain scan for research – recruiting now!

Aged 18-55? Diagnosed with infantile nystagmus? Within travelling distance of Cardiff? Researchers at Cardiff University invite you to take part in an exciting research study looking into brain activity in … Continue reading Have a brain scan for research – recruiting now!