When Ruby was 9 months old I noticed one of her eyes shaking, which prompted me to visit our local optician. They informed me that they didn’t treat children that … Continue reading Ruby’s Story

When Ruby was 9 months old I noticed one of her eyes shaking, which prompted me to visit our local optician. They informed me that they didn’t treat children that … Continue reading Ruby’s Story
At 12 years old, I was preparing for my first summer Scout camp in Guernsey, which required a 10-hour ferry ride from Weymouth, marking my first time leaving mainland UK. … Continue reading Peter’s 1984 Story
Ava was born with congenital nystagmus. She loves rugby and swimming. She’s full of life and lets nothing get in her way.
In 1984 I had never heard of nystagmus and had no connection with the condition at all. It was for me a very momentous year, though, because it was the … Continue reading Sue’s 1984 Story
This is a photo of my elder brother (Tony) and me at my first birthday celebration in Nigeria. Report has it that he desperately tried to steal the show but … Continue reading Onyeka’s 1984 Story
Ready to hop into some Easter fun? Join our virtual Easter Egg Hunt through our website to find hidden eggs
each with a letter on it to be discovered! Collect … Continue reading Join our virtual Easter Egg Hunt
A research team at Anglia Ruskin University is recruiting parents to take part in their latest research project. Here’s the team to introduce it: We’d like to let you know … Continue reading Take part in the Cascade project
Calling all pancake enthusiasts and creative cooks! It’s time to dust off your spatulas and put your culinary skills to the test because the Nystagmus Network is hosting an exciting … Continue reading Join us for a flipping fantastic celebration
George has not yet completed his first month as an intern Information Support Officer with the Nystagmus Network. This week he was given a very special assignment, to give oral … Continue reading George gives his oral evidence to the APPG
Aged 18-55? Diagnosed with infantile nystagmus? Within travelling distance of Cardiff? Researchers at Cardiff University invite you to take part in an exciting research study looking into brain activity in … Continue reading Have a brain scan for research – recruiting now!