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Author: Sue Ricketts

Front cover of the book 'Can I tell you about nystagmus?'.

Can I tell you about nystagmus?


The Nystagmus Network is delighted to share news of the launch today of a brand new book about nystagmus. Written by Nadine Neckles, the book looks at nystagmus from a … Continue reading Can I tell you about nystagmus?

Posted on February 21, 2019February 20, 2019Author Sue RickettsCategories Charity highlights, Living with nystagmus, Members only, News, Open Day 2019Tags Can I tell you about nystagmus? book launch, membership, Nadine Neckles, Open Day
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Regular giving


The Nystagmus network relies entirely on membership subscriptions, fundraising, gifts in wills and donations to be able to continue its important work supporting the nystagmus community, raising awareness of the … Continue reading Regular giving

Posted on February 18, 2019February 18, 2019Author Sue RickettsCategories Fundraising, PostsTags CAF Donate, donations, regular giving

Fundraising? It’s a Colson family affair


The Colson family are serious about fundraising for nystagmus research. Sisters Laura and Ellie are taking part in the Peak District Ultra Challenge this summer, their first ever ultra marathon, … Continue reading Fundraising? It’s a Colson family affair

Posted on February 14, 2019February 14, 2019Author Sue RickettsCategories Charity highlights, FundraisingTags Colson skips, nystagmus research, Peak District Ultra Challenge

Walk with us!


There’s still time to register to join Team Nystagmus Network to walk Eye to Eye at 11am on Sunday 10th March. You can choose to walk the 4 or 14 … Continue reading Walk with us!

Posted on February 14, 2019February 14, 2019Author Sue RickettsCategories Events, FundraisingTags Eye to Eye Walk, Moorfields Eye Hospital, sponsored walk, UCL

Join us for an Easter Walk


Run or walk 25 miles or 25 kilometres around Windsor Great Park on Easter Saturday, 20 April 25k to help us raise money for nystagmus research. What better way to … Continue reading Join us for an Easter Walk

Posted on February 14, 2019February 14, 2019Author Sue RickettsCategories FundraisingTags Easter, sponsored walk, Ultra Challenges, Windsor

Remember us on Valentine’s Day


If you’re ordering that special Valentine’s Day gift for a loved one online, please remember your favourite charity, too. There are loads of retailers you might not even know are … Continue reading Remember us on Valentine’s Day

Posted on February 7, 2019February 7, 2019Author Sue RickettsCategories FundraisingTags Valentine's Day

Calling university applicants


A guest post on behalf of Rachel, from the University of Birmingham: I am looking for students with vision impairment in the UK who are currently applying for higher education … Continue reading Calling university applicants

Posted on February 7, 2019February 13, 2019Author Sue RickettsCategories Education, Information and SupportTags university

Are you in the team?


Team Nystagmus Network will be setting off to walk Eye to Eye at 11am on Sunday 10th March. You can choose to walk the 4 or 14 mile route. Team … Continue reading Are you in the team?

Posted on January 31, 2019February 5, 2019Author Sue RickettsCategories Events, FundraisingTags Eye to Eye Walk, Moorfields Eye Hospital, nystagmus research

Patient Information Day at SELVIS


For families, individuals, children and young people, professionals and organisations SATURDAY 30 MARCH 2019 11:00-15:00 London Vision South East, Can Mezzanine 7-14 Great Dover Street, London, SE1 4YR Come along … Continue reading Patient Information Day at SELVIS

Posted on January 29, 2019January 29, 2019Author Sue RickettsCategories Events, Information and Support

A lesson in nystagmus


The Nystagmus Network has a free to download lesson plan about nystagmus. Designed for use in schools and preschools on Nystagmus Awareness Day or any other day of the year, … Continue reading A lesson in nystagmus

Posted on January 23, 2019January 23, 2019Author Sue RickettsCategories Education, Information and Support, Living with nystagmus, Nystagmus Awareness Day

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