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Supporting people living with nystagmus

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Category: Charity highlights

Sam Jones

Sam’s challenge of a lifetime


Nystagmus Network Trustee, Sam Jones will be cycling 500 miles around the North Coast of Scotland in June this year to raise money for the Nystagmus Network. It’s the ultimate … Continue reading Sam’s challenge of a lifetime

Posted on January 25, 2021January 25, 2021Author Sue RickettsCategories Charity highlights, Fundraising, Nystagmus heroesTags North Coast 500 Cycle Ride, nystagmus, nystagmus network, Sam Jones
Tim stands by a Christmas tree. He is holding a glass of wine and wearing a strand of tinsel around his shoulders.

A Christmas message from Tim


Nystagmus Network Chairman, Tim Cuddeford has sent a Christmas message to members of the Nystagmus Network. Tim spoke of the challenges that 2020 has brought for everyone, not least the … Continue reading A Christmas message from Tim

Posted on December 22, 2020December 23, 2020Author Sue RickettsCategories Charity highlights, Members onlyTags 2020, chairman, charity, membership, nystagmus, nystagmus network, Tim Cuddeford
Children pointing at a computer screen.

Thank you for donating to our BBC Radio 4 appeal


Thank you to everyone who gave to our BBC Radio 4 charity appeal in June this year. The appeal raised £9, 230. You can read what a difference the appeal … Continue reading Thank you for donating to our BBC Radio 4 appeal

Posted on December 17, 2020December 17, 2020Author Sue RickettsCategories Charity highlights, FundraisingTags BBC charity appeal, BBC Radio 4, nystagmus, nystagmus network, Richard Osman
Zoe wears a care worker's uniform and a face mask pulled down under her chin for the photo.

Thank you, Zoe


It’s fitting that our final nystagmus hero of 2020 is someone who has been working tirelessly all year looking after some of our most vulnerable people. Zoe is a care … Continue reading Thank you, Zoe

Posted on December 16, 2020December 17, 2020Author Sue RickettsCategories Charity highlights, Living with nystagmus, Nystagmus heroes, Thank yousTags NHS, nystagmus, nystagmus network
Mike wears his Nystagmus Network T short and smiles for the camera

Thank you, Mike


What can we say about Mike that hasn’t been said already? He endured so much for the nystagmus cause this year – including very wet feet, a constantly rumbling tummy … Continue reading Thank you, Mike

Posted on December 11, 2020December 14, 2020Author Sue RickettsCategories Charity highlights, Living with nystagmus, Nystagmus heroes, Open Day 2020, Thank yous
3 woolly nystagmus mascots

Sold out!


Thank you to everyone who has ordered a woolly nystagmus mascot this year. We are now officially sold out. Together you have raised £360 and given new homes to 72 … Continue reading Sold out!

Posted on December 11, 2020December 17, 2020Author Sue RickettsCategories Charity highlights, FundraisingTags mascots, nystagmus, nystagmus network, Thank you
a Christmas bauble

Digital Nystagmus Network Christmas cards


Bring a little joy to far away friends and family this festive season with a Nystagmus Network digital Christmas card. 6 designs to choose from. Digital Christmas cards here

Posted on December 4, 2020December 4, 2020Author Sue RickettsCategories Charity highlights, FundraisingTags Christmas cards, digital, nystagmus, nystagmus network
12 thumbnail images of people who have given so much to the Nystagmus Network and the nystagmus community in 2020.

#GiveBack2020


We’ve all had to give up so much this year and we’ll all be pleased to make it to the end of 2020. But before we do, the Nystagmus Network … Continue reading #GiveBack2020

Posted on December 1, 2020December 3, 2020Author Sue RickettsCategories Charity highlights, Fundraising, Thank yous
The logo of Gene Vision

Gene Vision launches


Gene Vision launched to support those diagnosed with genetic eye diseases London, 01 December 2020 A new website, Gene Vision, has launched today, developed by Professor Mariya Moosajee and Dr … Continue reading Gene Vision launches

Posted on December 1, 2020December 1, 2020Author Sue RickettsCategories Charity highlights, NewsTags Gene Vision, genetic eye disease, genetics, Mariya Moosajee, nystagmus, nystagmus network
The fingers crossed logo of the National Lottery Community Fund

Thank you to National Lottery players


Thanks to the generosity of National Lottery players, the Nystagmus Network is in receipt of a further grant to support the work of the charity. This welcome additional funding is … Continue reading Thank you to National Lottery players

Posted on November 13, 2020November 13, 2020Author Sue RickettsCategories Charity highlights, Fundraising, Information and Support, NewsTags #CommunitiesCan, National Lottery Community Fund, Thank you

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