Nadine Neckles wrote the book ‘Can I tell you about Nystagmus?’ so that her young daughter, who has nystagmus, could live in a world more nystagmus aware. ‘Can I tell … Continue reading Can I tell you about Nystagmus?
Category: Information and Support
Publication update
Thanks go to Mike Hughes, our volunteer benefits adviser and all round expert on everything to do with benefits and nystagmus. Mike has updated his booklet on DLA, PIP and … Continue reading Publication update
Open Day 2019 – the highlights
Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys … Continue reading Open Day 2019 – the highlights
Going to uni with nystagmus
Today’s guest post comes from Ella, author of the blog, Life of Ella. Ella is a First Class Honours graduate and a civil servant. She also happens to have nystagmus. … Continue reading Going to uni with nystagmus
Manchester meet up
The next meeting of our new North West nystagmus network will take place on Saturday 7 September in central Manchester, 10am to 12 noon. Nystagmus Network trustee, Marie Turnbull will … Continue reading Manchester meet up
Orthoptist, Optometrist or Ophthalmologist?
With all those job titles beginning with ‘O’ it can be a bit confusing trying to work out who does what at the eye clinic. Here’s a handy guide from … Continue reading Orthoptist, Optometrist or Ophthalmologist?
Parent Power comes to Southampton
Parent Power, funded by the National Lottery Community Fund PLEASE NOTE – BOOKING IS NOW CLOSED The Nystagmus Network is now inviting parents and carers to attend the first of … Continue reading Parent Power comes to Southampton
Parent Power – our new project, funded by the Community Fund
The Nystagmus Network is delighted to announce that we have been awarded funding by the Community Fund for a brand new project, called Parent Power. The aim of the project … Continue reading Parent Power – our new project, funded by the Community Fund
A guide to a baby’s eyes
Often it’s a parent, close friend or family member who first discovers that there’s something different about a baby’s eyes. It could be nystagmus. Do you know the milestones in … Continue reading A guide to a baby’s eyes
Our new support group for Acquired Nystagmus
The Nystagmus Network is contacted more and more often by people living with Acquired Nystagmus. Experience of this condition is very different from Congenital Nystagmus in a number of ways. … Continue reading Our new support group for Acquired Nystagmus