The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for … Continue reading Nystagmus Patient Information Day
Category: Living with nystagmus
A new video on nystagmus
Published today as part of National Eye Health Week, a new YouTube video by Emily Davison, also known online as the Fashioneyesta, tells what nystagmus is and how it affects … Continue reading A new video on nystagmus
Little Amber – there to help
Nystagmus Network’s Rachel, writes: Here at the Nystagmus Network we’re always looking for new opportunities for our members. Recently we came across a charity awarding grants to blind and partially … Continue reading Little Amber – there to help
Guest post: Harry’s back at school!
Over the summer holidays we followed Harry’s progress as he underwent the Anderson Kestenbaum procedure to address the head turn associated with his nullpoint. Today we hear from Harry’s Dad, … Continue reading Guest post: Harry’s back at school!
Try VR at Open Day
The Nystagmus Network is currently funding pioneering research at the University of Sheffield which could really help improve the quality of life of people who acquire nystagmus in adulthood. Acquired … Continue reading Try VR at Open Day
Children’s health: why vision matters
When an infant is diagnosed with nystagmus, it’s very important to ensure that the child continues to have regular sight tests and check ups to make sure that other problems … Continue reading Children’s health: why vision matters
Guest post – Harry’s recovery from surgery continues
Harry and his family continue their post surgery journey. Ian writes: On day 7 after the op Harry is able to open his eyes for longer periods, the blurry vision … Continue reading Guest post – Harry’s recovery from surgery continues
Guest post – one week after Harry’s null point surgery
Harry has undergone the Anderson Kestenbaum procedure this summer to address his marked head turn. His Dad, Ian, has asked us to share their experiences. A few days after the operation … Continue reading Guest post – one week after Harry’s null point surgery
Guest post – Harry’s null point surgery
Ian is sharing his thoughts and experiences as his son undergoes Anderson Kestenbaum surgery this summer to address the head turn associated with his null point. In this post he … Continue reading Guest post – Harry’s null point surgery
Guest post – questions for Harry’s consultant
Harry and his parents had many, many questions before finally deciding to go ahead with null point surgery. Here are just some of the questions the family asked, with the answers … Continue reading Guest post – questions for Harry’s consultant