My name is Trish (Patricia). I was born in 1956. Nystagmus was virtually unknown back then. My parents struggled to keep me in mainstream school and I faced many challenges … Continue reading Patricia’s Story
Category: nystagmus networks
Walk with us
On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us
Notes from the January AN/Oscillopsia Forum
With people joining us from both sides of the Atlantic, there was some very interesting discussion at the most recent Nystagmus Network forum for adults with Acquired Nystagmus and Oscillopsia. … Continue reading Notes from the January AN/Oscillopsia Forum
Nystagmus Networking
With a most difficult year now thankfully behind us, the Nystagmus Network is here to support the nystagmus community in any way we can. Keeping you connected Virtual meet ups for … Continue reading Nystagmus Networking
Living with Acquired Nystagmus and Oscillopsia?
The Nystagmus Network runs a virtual support group where people living with Acquired Nystagmus and/or Oscillopsia chat together on email and on zoom to share their experiences and try to find answers together. … Continue reading Living with Acquired Nystagmus and Oscillopsia?
Nystagmus Network launches Nystagmus Youth
As part of the Nystagmus Network virtual Open day 2020 and as a new initiative to get younger people involved with the Network, the charity is creating a new online … Continue reading Nystagmus Network launches Nystagmus Youth
Your nystagmus research questions answered – question 3
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered … Continue reading Your nystagmus research questions answered – question 3
Your nystagmus research questions answered – question 2
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered … Continue reading Your nystagmus research questions answered – question 2
Your nystagmus research questions answered
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered … Continue reading Your nystagmus research questions answered
Manchester meet up
The next meeting of our new North West nystagmus network will take place on Saturday 7 September in central Manchester, 10am to 12 noon. Nystagmus Network trustee, Marie Turnbull will … Continue reading Manchester meet up