It’s thought that some types of nystagmus are caused by a genetic spelling mistake. Although nystagmus is not classified officially as a rare disease, we can all take part in … Continue reading Volunteers needed
Category: research
Improving the infantile nystagmus test
Delegates at 100% Optical learned about progress on refining the way an eye movement disorder is identified in babies Professor Jon Erichsen from the University of Cardiff gave a presentation … Continue reading Improving the infantile nystagmus test
Alison joins the Nystagmus Network
We are delighted to announce that Professor Alison Leary MBE has joined the Nystagmus Network as a trustee. After spending 10 years in science Prof. Leary undertook an RN diploma … Continue reading Alison joins the Nystagmus Network
Nystagmus researchers need your help
Common misconceptions about nystagmus A team of nystagmus researchers in the UK have recently shown that there is significant variation in the way people with nystagmus are supported and given … Continue reading Nystagmus researchers need your help
Join us at the Manchester meet up
The next meeting of our north west regional Nystagmus Network support group is on Saturday, 25 April from 1 to 3pm in central Manchester Adults with nystagmus, parents of children … Continue reading Join us at the Manchester meet up
Fight for Sight survey on eye conditions and sight loss
Fight for Sight needs your help as part of a ground-breaking survey into the experience of living with sight loss or an eye condition. By taking part in the survey … Continue reading Fight for Sight survey on eye conditions and sight loss
How well will my child see?
Researchers from the University of Leicester have identified a new way of predicting the future vision of children with infantile nystagmus. The research, published in the journal Ophthalmology has developed … Continue reading How well will my child see?
Funding research into blindness
Please listen to the ‘In Touch’ programme on BBC Radio 4 to catch Head of Research at Fight for Sight, Dr Rubina Ahmed and Professor Chris Hammond talking about the … Continue reading Funding research into blindness
Our New Year resolutions
… and our promises to you, the nystagmus community Thanks to your support and generosity throughout 2019, the Nystagmus Network can confidently resolve and promise that in 2020 we will … Continue reading Our New Year resolutions
Take part in sight services research
You can take part in a new study of services for people with impaired vision. Commissioned by major sight loss charities, the research aims to drive improvements to services. Phone … Continue reading Take part in sight services research