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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Seeing beyond … a survey


The Nystagmus Network has teamed up with training organisation Visualise to ensure that everyone involved in testing people’s eyesight is nystagmus aware. You can help make sure that all optometry … Continue reading Seeing beyond … a survey

Posted on July 23, 2018Author Sue RickettsCategories Information and SupportTags optometry, survey, Visualise

Advice from Glen on apps and phone tech


Glen is a VI blogger, friend and member of the Nystagmus Network. Our delegates enjoyed his extremely useful workshop at Open Day last year on building social networks. More recently, … Continue reading Advice from Glen on apps and phone tech

Posted on July 23, 2018Author Sue RickettsCategories Living with nystagmusTags assistive technology, phone apps

Thank you, King Cross Surgery!


The Nystagmus Network is hugely grateful to King Cross Surgery in Halifax for their amazing support on Nystagmus Awareness Day 2018. Practice Manager, Heather, whose 8 year old son has … Continue reading Thank you, King Cross Surgery!

Posted on July 5, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Thank yousTags King Cross Surgery, nystagmus in the open

Nystagmus research – a progress report


The Nystagmus Network is funding equipment and testing to underpin nystagmus research taking place at Cardiff University School of Optometry and Vision Sciences, in collaboration with the genetics research team … Continue reading Nystagmus research – a progress report

Posted on July 5, 2018Author Sue RickettsCategories researchTags nystagmus research, University of Cardff, University of Southampton

Celebrating National Sunglasses Day!


As photophobia is a frequent accompaniment to nystagmus and ocular albinism, we’re happy to join in a day of celebrating sunglasses and raising awareness of the importance of protecting your … Continue reading Celebrating National Sunglasses Day!

Posted on June 27, 2018June 26, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags National Sunglasses Day, nystagmus, ocular albinism

How amazing is Bradley


We couldn’t resist one more ‘amazing’ nystagmus success story. Not everyone with nystagmus can drive, but Bradley has turned driving into his philosophy on life. My name is Bradley. I’ve … Continue reading How amazing is Bradley

Posted on June 26, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, driving, nystagmus, ZING

2018 exams access arrangements feedback


Our friends at VIEW need your help. VIEW is a registered charity, which represents Qualified Teachers of Visually Impaired children and young people (QTVIs). It exists to help support the education, development and opportunities … Continue reading 2018 exams access arrangements feedback

Posted on June 26, 2018Author Sue RickettsCategories Guest postsTags exams access arrangements, VIEW

Want to abseil at the Queen Elizabeth Olympic Park?


Could you take the plunge and abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park? It’s an exhilarating descent to … Continue reading Want to abseil at the Queen Elizabeth Olympic Park?

Posted on June 25, 2018June 26, 2018Author Sue RickettsCategories FundraisingTags abseil, Moorfields Eye Hospital, nystagmus research, University College London

Sign up to Easy Fundraising for free donations


Every time you shop online you could be raising a donation for the Nystagmus Network, absolutely free. All you need to do is visit the Easy Fundraising website and click … Continue reading Sign up to Easy Fundraising for free donations

Posted on June 25, 2018Author Sue RickettsCategories FundraisingTags Easy Fundraising

An inspiring meeting with David Katz


The day before Nystagmus Awareness Day 2018, Information and Development Manager, Sue, and trustee, Peter, travelled to London to meet a very inspirational man – internationally acclaimed ‘blind’ photographer, David … Continue reading An inspiring meeting with David Katz

Posted on June 21, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Open Day 2018Tags David Katz, Through my Lenses

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