Nystagmus Awareness Day – Page 5

An Illustration of a vwery colourful friendly monster. He is green. He wears pink polka dot pyjamas and fluffy red slippers.

Kevin the Monster comes to life

Did you know that a very special group of young people with nystagmus have helped children’s author, Tim Pearce create a character for his brand new book, Secret Agent Striker … Continue reading Kevin the Monster comes to life

Raindrops on World Book Day

In celebration of World Book Day 2022, we are pleased to announce the publication of the Raindrops story book. This digital publication includes the winning stories, inspired by raindrops, written … Continue reading Raindrops on World Book Day

Edwin smiles for the camera. He is wearing dark glasses, leather gloves and a bandana.

How amazing is Edwin?

I was born with CN and for the most part consider myself to be lucky compared to many in our group. Service to others has been a significant part of … Continue reading How amazing is Edwin?

Wyatt smiles for the camera. He is wearing headphones and holding a games console.

How amazing is Wyatt?

Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents … Continue reading How amazing is Wyatt?

Grayson enjoys a rope swing by a lake. He is wearing dark glasses.

How amazing is Grayson?

I am Grayson and I am 5 on 18 June. I have Ocular Albinism and Nystagmus. When I started school in September, I was very scared and very nervous and was … Continue reading How amazing is Grayson?

Poppy wears dance training gear and poses beside a banner.

How amazing is Poppy?

My name is Poppy. I’m 11 years old. I was diagnosed with nystagmus when I was 2 months old. I never allow my nystagmus to hold me back. I love … Continue reading How amazing is Poppy?

A Nystagmus Network scented candle held in someone's hands. The candle is not lit.

Special edition scented candle raises funds for the Nystagmus Network

This lovely scented candle is specially created for the Nystagmus Network by Oli at No. 14 The Wick to celebrate Nystagmus Awareness Day 2021. The scent is Bergamot and Sage using a blend … Continue reading Special edition scented candle raises funds for the Nystagmus Network

Nystagmus news for eye care professionals

The Nystagmus Network now produces a digital newsletter for Dispensing Opticians and Optometrists. The first edition has just been published, bringing nystagmus news, stories and information directly to high street … Continue reading Nystagmus news for eye care professionals

A child takes part in an online writing workshop with author, Helen Rutter. On his desk is Helen's book 'The Boy Who Made Everyone Laugh'.

Children’s writing workshops this summer

Did you miss the children’s online writing workshop with fabulous children’s author, Helen Rutter? What a shame. That means you didn’t get to hear all about Helen’s inspiration behind her … Continue reading Children’s writing workshops this summer

Harry’s story for Raindrops

This is Harry. Harry is 9 years old. He’s just written his story for the Raindrops story writing competition. It’s about Raindrops and what they make him think of. Well … Continue reading Harry’s story for Raindrops