To mark the end of Wobbly Week 2018, Sue will be opening her tiny courtyard garden in Lincolnshire to the public for ‘nystagmus in the open‘. There will be tea and … Continue reading Nystagmus in the garden
Tag: nystagmus
Do you know your ECLO?
If you or someone in your family has nystagmus, then make sure you meet your ECLO (Eye Clinic Liaison Officer). You can ask for them the next time you visit … Continue reading Do you know your ECLO?
Nystagmus and Quality of Life
A research paper is republished this month into the quality of life of people living with nystagmus. Professor Irene Gottlob and Dr Rebecca McLean from the University of Leicester shared … Continue reading Nystagmus and Quality of Life
Marsha de Cordova MP – our Open Day keynote speaker
We are delighted to announce that we shall be joined on Open Day this year by Shadow Minister for Disabilities, Marsha de Cordova. Marsha has nystagmus and is severely sight … Continue reading Marsha de Cordova MP – our Open Day keynote speaker
Thursday is research news day on Facebook
Every Thursday on our Facebook page we publish the latest news on nystagmus research or publish details of new nystagmus trials that you can take part in. We are currently … Continue reading Thursday is research news day on Facebook
Every Wednesday is Nystagmus Awareness Day on Facebook
We started national and international Nystagmus Awareness Day, also known as Wobbly Wednesday, back in 2013. But every Wednesday is awareness day on our Facebook page. This means you can … Continue reading Every Wednesday is Nystagmus Awareness Day on Facebook
Nystagmus Awareness Day 2018
The Nystagmus Network is delighted to post some exciting news. In 2018 we are declaring 20 June the new permanent date for Nystagmus Awareness Day. Since 2013, we have celebrated … Continue reading Nystagmus Awareness Day 2018
It’s Tuesday – that’s Nystagmus Networking day on Facebook!
We call our charity the Nystagmus Network, because it’s very important to us to help people affected by nystagmus to get together for mutual support. There is no better feeling … Continue reading It’s Tuesday – that’s Nystagmus Networking day on Facebook!
Could you do something extraordinary for nystagmus?
In 2018 we’re looking for people who want to do something amazing. We’ve got lots of opportunities lined up and we’re ready to give you masses of support to follow … Continue reading Could you do something extraordinary for nystagmus?
Nystagmus Network launches new publication on nystagmus and driving
Whether or not people with nystagmus can drive is probably the most frequently asked question the charity receives. Because nystagmus is such a complex condition and affects everyone differently, there … Continue reading Nystagmus Network launches new publication on nystagmus and driving