In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye2Eye walk from the London Eye to the iconic eye on the front of the Moorfields Eye Hospital building. The walk takes place on Sunday 10 March 2019 and you can choose to walk 4 or 14 miles. Bring the children, bring the dog! Have a great day out and help us raise lots of money for nystagmus research at Moorfields and University College, London. To apply, please email us at [email protected] or call 01427 718093.
This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London.
Our 10 intrepid Team Nystagmus Network abseilers were set a sponsorship target of £250 each. At the time of writing they’ve already far exceeded that target and look set to be able to make a real impact on funding for nystagmus research over the coming months.
We wish them all well on behalf of the entire nystagmus community.
Vikki’s family have been members and supporters of the Nystagmus Network for many years. Parents, Peter and Lynne, even organised an entire Open Day one year.
Every penny the couple raise will go directly into nystagmus research at Moorfields Eye Hospital and University College, London.
Could you take the plunge and abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park? It’s an exhilarating descent to the ground, with a breathtaking 20 mile vista across London, including iconic buildings such as the Gherkin, St Paul’s Cathedral, Canary Wharf and Wembley Stadium, as well as the world famous sporting venues at Queen Elizabeth Olympic Park.
It surely is a once in a lifetime challenge!
The Nystagmus Network is partnering with Moorfields Eye Charity to raise money for nystagmus research at Moorfields Eye Hospital, where Mr Vijay Talyor is currently investigating congenital nystagmus and visual crowding, and its research the partner, the University College London (UCL) Institute of Ophthalmology where Dr Parashkev Nachev is pioneering the use of magnetic implants to control the rapid eye movements associated with acquired nystagmus.
Your fundraising abseil will directly support these and other nystagmus research projects.
Time and date: 8am – 1pm, Sunday 23 September 2018
Registration fee: £50
Sponsorship target: £250
Address: ArcelorMittal, Queen Elizabeth Olympic Park, London E15 2NH
Experience: No experience necessary, all training given on the day
Participants will also receive:
· A fundraising pack full of tips and advice
· Ongoing support from our expert fundraisers
· A Moorfields t-shirt if you raise over £350
· A free photo if you raise over £500
If you think you could take the leap for nystagmus research, please complete the form below.
Researchers at University College London, Moorfields Eye Hospital, and the University of Oxford are developing magnetic implants to treat nystagmus. Last year, Nystagmus Network assisted Dr Parashkev Nachev, from University College London, in recruiting suitable candidates with the acquired from of nystagmus to take part in the next stage trial, following initial success with a single subject.
A new research project is being undertaken at Moorfields Eye Hospital and University College London. The aim of the study is to understand better the visual abilities of people with congenital nystagmus, with a particular focus on visual crowding, a phenomenon which occurs when an object that is visible in isolation becomes impossible to recognise when surrounded by other objects.
The Nystagmus Network is supporting Mr Vijay Tailor, Paediatric Clinical Trials Research Orthoptist and Clinical PhD Training Fellow, to recruit suitable participants.
Subjects should have a formal diagnosis of Congenital Idiopathic Nystagmus and be aged 18 to 50.
People who also have albinism or strabismus amblyopia (‘squint’ or ‘lazy eye’) are not suited to this particular study.
If you have short or long sight, this is not a problem provided you wear prescription glasses or contact lenses to correct this.
If you would like to find out more about the research project and apply to take part then please complete and submit the form below. By completing the form you are giving us permission to pass on your details to the relevant research team.
