Nystagmus Network launches new publication on nystagmus and driving


Whether or not people with nystagmus can drive is probably the most frequently asked question the charity receives. Because nystagmus is such a complex condition and affects everyone differently, there is no definitive answer. In our new publication, Nystagmus and Driving, we address all the issues, answer your questions and signpost to free and concessionary … Continue reading Nystagmus Network launches new publication on nystagmus and driving

Nystagmus Network and Fight for Sight fund two new nystagmus research projects


Nystagmus Network and Fight for Sight have partnered to fund research aimed at the early detection of nystagmus and improve the quality of life of those with nystagmus Fight for Sight, the UK’s leading eye research charity, and Nystagmus Network, the foremost charity in the UK providing support and information about nystagmus, are working in partnership to fund … Continue reading Nystagmus Network and Fight for Sight fund two new nystagmus research projects

Richard receives New Year’s honour


The Nystagmus Network is delighted and proud to announce that our charity Chairman, Richard Wilson, has received an OBE in Her Majesty the Queen’s New Year’s Honours list today. Richard says: “This award is primarily for my work as a Civil Servant for the past 36 years, but undoubtedly it also reflects my time as … Continue reading Richard receives New Year’s honour

Research investment by the Nystagmus Network


Thanks to generous donations and income from membership subscriptions, trustees of the Nystagmus Network were able to allocate their full research budget to new and continuing nystagmus studies in 2017. Towards the end of the year an opportunity arose to fund an additional research project, likely to have a huge impact on the quality of … Continue reading Research investment by the Nystagmus Network

Mousetrap Theatre Experience, London


The Nystagmus Network is considering organising a theatre experience for children and young people with nystagmus and their families, in partnership with Mousetrap Theatre Projects. The day would include a drama workshop, touch tour of the theatre (where children get to see costumes and props up close) and tickets for a London show. It would … Continue reading Mousetrap Theatre Experience, London

Nystagmus and disability sports classification


The Nystagmus Network often hears of people struggling with the current classifications for vision impairment in sports. Since many people with nystagmus probably don’t classify with the current test we would like to invite members of the nystagmus community to take part in new research which may bring us all one step closer to inclusion … Continue reading Nystagmus and disability sports classification

Research participation opportunity – albinism in the over 60s


Albinism researchers in Southampton (Jay Self and Helena Lee) would love to hear from anyone with any form of albinism who is over the age of 60. If you or anyone you know fits the bill, please read on … Jay and Helena are seeking to understand two questions which have baffled researchers for some … Continue reading Research participation opportunity – albinism in the over 60s

Making the most of education – Rory Cobb


The Nystagmus Network was delighted to have Rory Cobb with us at Open Day 2017 to lead off the parents’ conference with an informative and inspiring presentation. Rory has a life time’s experience of working in the field of education and supporting children with low vision. Rory was ably assisted by his RNIB colleague, Sue … Continue reading Making the most of education – Rory Cobb

Nystagmus research update from Southampton


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Mr Jay Self BM, FRCOphth, PhD, Associate Professor at Southampton … Continue reading Nystagmus research update from Southampton

Nystagmus research update from Sheffield


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Dr Helen Griffiths, Senior Lecturer in Orthoptics … Continue reading Nystagmus research update from Sheffield