Mousetrap Theatre Experience, London


The Nystagmus Network is considering organising a theatre experience for children and young people with nystagmus and their families, in partnership with Mousetrap Theatre Projects. The day would include a drama workshop, touch tour of the theatre (where children get to see costumes and props up close) and tickets for a London show. It would … Continue reading Mousetrap Theatre Experience, London

Nystagmus and disability sports classification


The Nystagmus Network often hears of people struggling with the current classifications for vision impairment in sports. Since many people with nystagmus probably don’t classify with the current test we would like to invite members of the nystagmus community to take part in new research which may bring us all one step closer to inclusion … Continue reading Nystagmus and disability sports classification

Research participation opportunity – albinism in the over 60s


Albinism researchers in Southampton (Jay Self and Helena Lee) would love to hear from anyone with any form of albinism who is over the age of 60. If you or anyone you know fits the bill, please read on … Jay and Helena are seeking to understand two questions which have baffled researchers for some … Continue reading Research participation opportunity – albinism in the over 60s

Making the most of education – Rory Cobb


The Nystagmus Network was delighted to have Rory Cobb with us at Open Day 2017 to lead off the parents’ conference with an informative and inspiring presentation. Rory has a life time’s experience of working in the field of education and supporting children with low vision. Rory was ably assisted by his RNIB colleague, Sue … Continue reading Making the most of education – Rory Cobb

Nystagmus research update from Southampton


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Mr Jay Self BM, FRCOphth, PhD, Associate Professor at Southampton … Continue reading Nystagmus research update from Southampton

Nystagmus research update from Sheffield


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Dr Helen Griffiths, Senior Lecturer in Orthoptics … Continue reading Nystagmus research update from Sheffield

Nystagmus research update from Plymouth


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. We were delighted to have John … Continue reading Nystagmus research update from Plymouth

Nystagmus research update from London


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Maria Theodorou, Consultant Ophthalmologist at Moorfield’s … Continue reading Nystagmus research update from London

Nystagmus research update from Leicester


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Dr Rebecca McLean (PhD), Research Associate, Department … Continue reading Nystagmus research update from Leicester

Nystagmus research update from Cardiff


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each team presented news of the latest developments over the past year and highlighted work in progress for the future. Professor Jonathan T. Erichsen, DPhil, Professor of … Continue reading Nystagmus research update from Cardiff