Reform for children and young people with SEND


As part of a SEND reform, which the UK government describes as ‘ambitious’, a green paper has been published as part of a consultation on a stronger national system for children with special educational needs and disabilities (SEND), boosting parent confidence. Better support for children and young people with special educational needs and disabilities (SEND) … Continue reading Reform for children and young people with SEND

Curriculum Framework for Children and Young People with Vision Impairment (CFVI)


Defining specialist skills development and best practice support to promote equity, inclusion and personal agency. Overview of the CFVI The Curriculum Framework for Children and Young People with Vision Impairment (CFVI) has been developed to support children and young people with vision impairment access an appropriate and equitable education.  The framework presents outcomes within 11 … Continue reading Curriculum Framework for Children and Young People with Vision Impairment (CFVI)

Parent Power April


The Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend a further session in our series of Parent Power webinars. Each webinar, led by Karen, from IPSEA (the Independent Provider of Special Education Advice), supported by the charity’s volunteer education advocate, Claire and … Continue reading Parent Power April

More Parent Power coming soon


The Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend our periodic Parent Power webinars. Each webinar, led by Karen, from IPSEA (the Independent Provider of Special Education Advice), supported by the charity’s volunteer education advocate, Claire and Sue from the staff team, … Continue reading More Parent Power coming soon

Parent Power this February


Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend one of a brand new series of Parent Power webinars. Each webinar, led by Karen, from IPSEA (the Independent Provider of Special … Continue reading Parent Power this February

SEND within a COVID-19 pandemic


In his presentation for the Nystagmus Network virtual Open Day 2020, Kevin McManamon, Senior Associate, Educational Team, Geldards LLP sets out the current position of SEND support in schools in England and Wales. To view Kevin’s and all the other presentations, please register here

Join Frances at Open Day


The Nystagmus Network’s volunteer Education Advocate, Frances Lilley has been supporting families with education for many years on behalf of the charity. She became a trustee in May 2016. She has a teenage daughter with congenital idiopathic nystagmus. Trained by IPSEA, Frances gives parents and carers one to one legally-based advice and support on how … Continue reading Join Frances at Open Day