Vivien holds her MBE with family members beside her.

Vivien receives her honours


Following the announcement that Vivien Jones, Founder and Honorary President of the Nystagmus Network, had been awarded an MBE in His Majesty’s New Year Honours, Vivien and her family travelled … Continue reading Vivien receives her honours

The Nystagmus Network team wearing their charity T-shirts and jeans.

Our Jeans for Genes grant success


We are absolutely thrilled to announce we have received a grant from Jeans for Genes. This incredible support will enable us to create and distribute a vital, parent-friendly resource to … Continue reading Our Jeans for Genes grant success

A sheet with exit signs in a range of different fonts.

A study of signage for nystagmus and glaucoma


A few months ago, a student of Graphic Design from Nottingham Trent University, Elliot Judge contacted the Nystagmus Network for help distributing a survey to collect primary research for his … Continue reading A study of signage for nystagmus and glaucoma

An audience clapping with a shortlisted badge for the Charity Governance Awards 2025.

Nystagmus Network shortlisted for UK Charity Governance Awards 2025


The Nystagmus Network has been shortlisted for the tenth and final Charity Governance Awards. It is in the running for the improving impact in small charities award and a first-place … Continue reading Nystagmus Network shortlisted for UK Charity Governance Awards 2025