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Author: Sue Ricketts

Glen’s taking the abseil challenge. Could you?


Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open … Continue reading Glen’s taking the abseil challenge. Could you?

Posted on August 17, 2018Author Sue RickettsCategories FundraisingTags abseil, fundraising, Moorfields Eye Hospital, nystagmus, research

Claire’s taking the leap for nystagmus. Want to join her?


Introducing Claire, the next member of Team Nystagmus Network Abseil. Claire is a keen rock climber, so abseiling her way down the ArcelorMittal Orbit is going to be a walk … Continue reading Claire’s taking the leap for nystagmus. Want to join her?

Posted on August 17, 2018Author Sue RickettsCategories FundraisingTags abseil, fundraising, Moorfields Eye Hospital, nystagmus, research

An inspirational student


Ella is a third year student at Nottingham Trent University. She just happens to have nystagmus. She is full of advice and inspiration for other young people with nystagmus. Hear … Continue reading An inspirational student

Posted on August 8, 2018Author Sue RickettsCategories Education, Information and Support, Living with nystagmusTags nystagmus, RNIB Connect Radio, university

Nystagmus Research Conference 2018


The Nystagmus Network is hosting a nystagmus research conference later this year. Delegates are senior researchers, academics and clinicians from the top UK nystagmus research centres, with expertise in testing … Continue reading Nystagmus Research Conference 2018

Posted on August 2, 2018Author Sue RickettsCategories Posts

Seeing Beyond The Eyes


The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s … Continue reading Seeing Beyond The Eyes

Posted on August 2, 2018March 30, 2023Author Sue RickettsCategories Guest posts, Information and Support, PostsTags awareness, clinicians, information, living with nystagmus, nystagmus, support, Visualise Training and Consultancy

Vikki and Tom – our first abseilers


Vikki and her husband, Tom, were the very first to sign up to abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. … Continue reading Vikki and Tom – our first abseilers

Posted on August 1, 2018Author Sue RickettsCategories FundraisingTags abseil, Moorfields Eye Hospital, nystagmus research, University College London

Twins appeal!


Here at the Nystagmus Network we often hear from people who are twins or parents of twins. Sometimes both twins have nystagmus, but sometimes only one of them does. This … Continue reading Twins appeal!

Posted on August 1, 2018Author Sue RickettsCategories researchTags identical twins, nystagmus

Visual impairment and mental health


Children aged between 8 and 11 years old who live with a visual impairment are three times more likely to develop a mental health problem than children with no visual … Continue reading Visual impairment and mental health

Posted on July 26, 2018Author Sue RickettsCategories Information and Support, Living with nystagmus, Social and emotional aspectsTags children and young people, mental health, nystagmus, visual impairment

Open Day tickets on sale now!


Tickets for the Nystagmus Network Open Day 2018 go on general sale at midday today. With a packed line up of speakers and presenters, including Marsha De Cordova MP, Shadow … Continue reading Open Day tickets on sale now!

Posted on July 26, 2018July 27, 2018Author Sue RickettsCategories Charity highlights, Open Day 2018Tags nystagmus research
Simon in Nystagmus Network T shirt.

Well done, Simon! He did it!


Simon jumped out of a plane for the Nystagmus Network this morning and has raised over £1,000 for the charity! Fresh back from a family holiday, Simon took to the … Continue reading Well done, Simon! He did it!

Posted on July 26, 2018July 26, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags bucket list, nystagmus in the open, parachute jump, sky diving

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