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Author: Sue Ricketts

Well done, Harry!


Harry and his family raised over £1,000 for the Nystagmus Network last weekend by taking part in a sponsored fun triathlon. What a phenomenal achievement! Well done, Harry! To sponsor … Continue reading Well done, Harry!

Posted on July 25, 2018July 26, 2018Author Sue RickettsCategories Fundraising, Thank yousTags bucket list, summer challenge

James and Thomas’s Summer Challenge


James and his little brother, Thomas, are taking on a very special challenge this summer to raise money for two charities very close to the family’s heart. James (8) and … Continue reading James and Thomas’s Summer Challenge

Posted on July 25, 2018Author Sue RickettsCategories FundraisingTags chromosome 18q-, fundraising, nystagmus, nystagmus network

Free Open Day tickets – final call!


Members of the Nystagmus Network have just 24 hours left to book their free priority places for the 2018 Open Day in September. If you haven’t already done so, please … Continue reading Free Open Day tickets – final call!

Posted on July 25, 2018Author Sue RickettsCategories Members only, Open Day 2018

Resources for teachers and parents


The school summer holidays may have only just begun, but for teachers this is the time they think about preparing all those courses and lessons for the new school year. … Continue reading Resources for teachers and parents

Posted on July 24, 2018July 24, 2018Author Sue RickettsCategories Information and SupportTags parents, pupils, school, teachers

A helping hand with taxes


Did you know that RNIB has a tax team that supports blind and partially sighted people with tax, tax credits and HMRC issues across the UK? The team, based in … Continue reading A helping hand with taxes

Posted on July 23, 2018Author Sue RickettsCategories Information and SupportTags RNIB, tax support

Seeing beyond … a survey


The Nystagmus Network has teamed up with training organisation Visualise to ensure that everyone involved in testing people’s eyesight is nystagmus aware. You can help make sure that all optometry … Continue reading Seeing beyond … a survey

Posted on July 23, 2018Author Sue RickettsCategories Information and SupportTags optometry, survey, Visualise

Advice from Glen on apps and phone tech


Glen is a VI blogger, friend and member of the Nystagmus Network. Our delegates enjoyed his extremely useful workshop at Open Day last year on building social networks. More recently, … Continue reading Advice from Glen on apps and phone tech

Posted on July 23, 2018Author Sue RickettsCategories Living with nystagmusTags assistive technology, phone apps

Thank you, King Cross Surgery!


The Nystagmus Network is hugely grateful to King Cross Surgery in Halifax for their amazing support on Nystagmus Awareness Day 2018. Practice Manager, Heather, whose 8 year old son has … Continue reading Thank you, King Cross Surgery!

Posted on July 5, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Thank yousTags King Cross Surgery, nystagmus in the open

Nystagmus research – a progress report


The Nystagmus Network is funding equipment and testing to underpin nystagmus research taking place at Cardiff University School of Optometry and Vision Sciences, in collaboration with the genetics research team … Continue reading Nystagmus research – a progress report

Posted on July 5, 2018Author Sue RickettsCategories researchTags nystagmus research, University of Cardff, University of Southampton

Celebrating National Sunglasses Day!


As photophobia is a frequent accompaniment to nystagmus and ocular albinism, we’re happy to join in a day of celebrating sunglasses and raising awareness of the importance of protecting your … Continue reading Celebrating National Sunglasses Day!

Posted on June 27, 2018June 26, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags National Sunglasses Day, nystagmus, ocular albinism

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