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Category: Events

Join the crowds to cheer on Julian as he begins his Big Blind Walk


If you can join Julian for just one of the 1,000 miles he plans to walk for sight research, or stand at the side of the road as he passes … Continue reading Join the crowds to cheer on Julian as he begins his Big Blind Walk

Posted on April 4, 2018Author Sue RickettsCategories Charity highlights, EventsTags Big Blind Walk

Thank you to Mike and Studley Wood GC


Nystagmus Network trustee and golfing enthusiast, Peter Greenwood, traveled to Studley Wood Golf Club in Oxfordshire earlier this week to receive, on behalf of the charity, a cheque for £4,300. … Continue reading Thank you to Mike and Studley Wood GC

Posted on March 27, 2018April 3, 2018Author Sue RickettsCategories Charity highlights, Events, Fundraising

Nystagmus Network Snow Camps 2018


Thanks to Outspan Rebels team founder, Jamie Fuller, who has managed to secure sponsorship from the Snow Sports Foundation, there will be two Nystagmus Network Snow Camps this summer. These … Continue reading Nystagmus Network Snow Camps 2018

Posted on March 22, 2018Author Sue RickettsCategories EventsTags skiing, Snow Camp

Sue will be at ANUK conference


Nystagmus Network’s Executive Information and Development Manager, Sue, will be speaking at the Aniridia UK London meeting on Saturday, 14 April. ANUK warmly invite everyone affected by aniridia to join … Continue reading Sue will be at ANUK conference

Posted on March 13, 2018Author Sue RickettsCategories EventsTags aniridia
VIEW logo.

Meet Sue at VIEW


This Thursday, Sue from Nystagmus Network, will be attending the annual VIEW conference for teachers and specialists in educating visually impaired children and young people. The event takes place over … Continue reading Meet Sue at VIEW

Posted on March 13, 2018Author Sue RickettsCategories EventsTags Birmingham, education, QTVI, VIEW

Sue attends Partially Sighted Society Conference 2018


Last Friday Sue attended the PSS very first Sight Loss conference in Doncaster on behalf of the Nystagmus Network. The day was attended by around 100 people with visual impairment, … Continue reading Sue attends Partially Sighted Society Conference 2018

Posted on March 12, 2018March 12, 2018Author Sue RickettsCategories EventsTags cataract surgery, Partially Sighted Society

Open Day 2018 – booking open soon


We are just finalising details of our annual Open Day 2018. We shall once again be in central Birmingham. The date is Saturday, 29 September. The venue is the same … Continue reading Open Day 2018 – booking open soon

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags membership

David Katz – our special guest speaker at Open Day 2018


We are delighted to announce that David Katz, the internationally acclaimed photographer, will be joining us as our special guest speaker at our annual Open Day on 29 September. David … Continue reading David Katz – our special guest speaker at Open Day 2018

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags David Katz, Pyeongchang, Through my Lenses, Winter Paralympics

Marsha de Cordova MP – our Open Day keynote speaker


We are delighted to announce that we shall be joined on Open Day this year by Shadow Minister for Disabilities, Marsha de Cordova. Marsha has nystagmus and is severely sight … Continue reading Marsha de Cordova MP – our Open Day keynote speaker

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags Marsha de Cordova, nystagmus, Open Day

Nystagmus Awareness Day 2018


The Nystagmus Network is delighted to post some exciting news. In 2018 we are declaring 20 June the new permanent date for Nystagmus Awareness Day. Since 2013, we have celebrated … Continue reading Nystagmus Awareness Day 2018

Posted on February 28, 2018February 27, 2018Author Sue RickettsCategories Charity highlights, Events, Nystagmus Awareness Day, Wobbly WednesdayTags awareness, fundraising, nystagmus, wobbly wednesday

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