The voice of Nystagmus Network member, acclaimed soprano and Open Day 2020 keynote speaker, Joanne Roughton-Arnold features in the inspirational documentary, Rising Phoenix, a Netflix production charting the history of the Paralympic Games through the personal stories of some of the sports stars themselves. Described by Daniel Pemberton, the film’s musical director as “an incredibly … Continue reading Joanne sings for the Rising Phoenix
Our next webinar is all about going to a high street optician’s when you have nystagmus. Tuesday 12 May at 3pm You have had an eye test … what now ? An interactive webinar for the nystagmus community. Jayshree Vasani (Dispensing Optician) and Sarah Arnold (Optometrist) want to dispel the myths around what happens after … Continue reading Let’s go for an eye test!
Together with Sight and Sound Technology, the Nystagmus Network is offering 2 free webinars on low vision technology for adults and children with nystagmus. Thursday 23 April, 6-7pm: Low vision technology for adults with acquired or congenital nystagmus Thursday 7 May, 6-7pm: Low vision technology for children with nystagmus, with particular focus on access to … Continue reading Free webinars on low vision technology
“Expectations Exceeded” Parent and family workshop run by Friends of Moorfields and Blind in Business Friday 22 May 2020 2pm to 5pm Kemp House (next to Moorfields Eye Hospital) 152-160 City Road, EC1V 2NX The Boardroom, 4th Floor Parents, carers, young people, friends and family are all welcome to attend! Learn and speak with blind … Continue reading Blind in Business event
Free digital skills, information and well-being event for families with visually impaired children Saturday 28th March 1.30-4pm Swansea University Health and Wellbeing Centre To book a place contact Sue Neale Eye Clinic Liaison Officer Tel 01792 200390 Mobile 0790 852 7522
The next meeting of our north west regional Nystagmus Network support group is on Saturday, 25 April from 1 to 3pm in central Manchester Adults with nystagmus, parents of children with nystagmus and anyone supporting someone with nystagmus are all welcome to come along. The meeting is hosted by Nystagmus Network trustee, Marie Turnbull (pictured). … Continue reading Join us at the Manchester meet up
Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our final Parent Power education workshop. Venue: DoubleTree by Hilton, Leeds City Centre Date: Saturday 14 March Time: 9.30am to 3pm The aim of the project is to empower parents and carers with legally based information on … Continue reading Parent Power comes to Leeds
LookFest is an accessible family festival outdoors and under canvas for families where there are children and young people with impaired vision.After the huge success of LookFest 19, they’re doing it all over again in July 2020. Join them in the beautiful Herefordshire countryside for a fun-filled weekend with the #LookFamily See the highlights of last … Continue reading Are you going to LookFest 2020?
Follow Mike’s wiggly progress on his Facebook page, here and donate to his Nystagmus Network fundraising page, here. A sight-impaired young Englishman, Mike Larcombe, is preparing to trek across New Zealand to raise money for a complex eye condition that blurs his vision. Mike has nystagmus, which he refers to as “wiggly eyes” and so … Continue reading Trekking through Middle Earth for nystagmus research
Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue: DoubleTree by Hilton Bristol City Centre Date: Saturday 29 February Time: 9.30m to 3pm The aim of the project is to empower parents and carers with legally based information on … Continue reading Parent Power comes to Bristol