If you’ve ever wondered how a person with nystagmus sees or how the condition affects their sight, listen to Richard, Harriet and Will explain in our video. You can show … Continue reading Nystagmus, the way we see it
Category: Living with nystagmus
Support for adults with nystagmus
Whether you’ve had nystagmus all your life or have acquired it more recently, the Nystagmus Network is here to support adults with the condition, with information, research updates, news, meetings, … Continue reading Support for adults with nystagmus
Real life nystagmus stories
The Nystagmus Network is pleased to be able to bring you so many real life nystagmus stories, thanks to the thoughtfulness and generosity of members of the nystagmus community. Today … Continue reading Real life nystagmus stories
Guest post: Mélissa’s story of acquired nystagmus
Mélissa was a healthy young woman, living and working in Canada until suddenly she acquired nystagmus and everything changed. Melissa is now adjusting to her new life with nystagmus and … Continue reading Guest post: Mélissa’s story of acquired nystagmus
Free benefits information
Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is … Continue reading Free benefits information
Our education support services
Members of the Nystagmus Network are entitled to free education support and information whenever and for as long as they need it. This service is provided free of charge to … Continue reading Our education support services
Our information and support line
Our information and support line is available 24/7. You can help us keep it open with a donation this Christmas. Thank you. Find out more about Nystagmus is … this … Continue reading Our information and support line
Merton Vision Event
Merton Vision, London will be holding a patient information day tomorrow, Friday 23 November, from 12 noon to 4pm. Please come along to find out more about nystagmus and albinism. The … Continue reading Merton Vision Event
Seeing Beyond the Eyes
The Nystagmus Network is pleased and proud to have played a tiny part in the Seeing Beyond the Eyes project, headed by Dan Williams at Visualise Training. Thanks to Dan, … Continue reading Seeing Beyond the Eyes
Congratulations, Marsha
Marsha De Cordova MP, Shadow Minister for Disabilities and MP for Battersea, features in the Shaw Trust’s Disability Power 100 2018. This is well deserved recognition for a person who … Continue reading Congratulations, Marsha