In the run up to Nystagmus Awareness Day on 20 June 2020, we are once again asking you to share your amazing nystagmus success stories. Not only do these stories … Continue reading How amazing are you?
Category: Nystagmus Awareness Day
Our wobbly photography competition – judged by David Katz
We want to raise as much awareness of nystagmus as possible this year and make sure that everyone has a chance to take part, so we’re running our wobbly photography … Continue reading Our wobbly photography competition – judged by David Katz
Nystagmus Awareness Day 2020
We may all be staying at home, but we can still mark national and international Nystagmus Awareness Day. Here are just some of the ways you can get involved. How amazing are … Continue reading Nystagmus Awareness Day 2020
Nystagmus is …
In the run up to Nystagmus Awareness Day on 20 June, we published lots of your nystagmus success stories in our campaign “How amazing are you?” One of the most popular stories … Continue reading Nystagmus is …
Howzat?
Nystagmus Network supporter, Phil Morris organised a charity cricket match on Sunday 30th June 2019. The teams were Phil’s own Hendrefoilan Hedgehogs versus an Invitational 11 from a number of … Continue reading Howzat?
Thank you – you are amazing
As ‘wobbly week’ draws to a close for another year we just wanted to thank everyone for making Nystagmus Awareness day 2019 such a success. Thank you to our fundraisers, … Continue reading Thank you – you are amazing
How amazing is Aneeba?
Thank you for sending us all your nystagmus success stories. We just love to read them and we know they bring hope and inspiration to so many people. Today we … Continue reading How amazing is Aneeba?
How amazing is Ellen?
Throughout June we’ve been celebrating your nystagmus success stories in our campaign ‘How amazing are you?’ Today, Ellen shares her story: “My name is Ellen and I’m 32 years old. I’m … Continue reading How amazing is Ellen?
Trustees discuss Parent Power with Marsha
On Thursday 20 June, Nystagmus Awareness Day a group of Nystagmus Network trustees met with Marsha de Cordova MP in Parliament. Earlier that morning, Marsha had tweeted her own Nystagmus … Continue reading Trustees discuss Parent Power with Marsha
How amazing is Sonny-John?
In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” On Nystagmus Awareness Day itself a … Continue reading How amazing is Sonny-John?