Nystagmus heroes – Page 6 – Nystagmus Network

Julia and her young daughter smile for the camera. They are at the seaside and the child is holding a toy windmill.

Thank you, Julia

Living with the triple whammy of nystagmus, myopia and astigmatism, Julia is an accomplished musician. She also sings in choirs, which often happens in poorly lit churches. In her blog … Continue reading Thank you, Julia

Josh and his family smile for the camera.

Thank you, Josh

Josh can’t see rain – can you? Josh was born with nystagmus and ocular albinism, but he hasn’t let that hold him back. Josh has been a primary school teacher … Continue reading Thank you, Josh

Thank you, Jaina

Jaina joined the Nystagmus Network team in August 2020 as an intern, spending some time to gain experience of working in a small charity. Jaina was hugely helpful in the … Continue reading Thank you, Jaina

Claire and her young son smile for the camera

Thank you, Claire

Both Claire and her young son, Zac have nystagmus. In 2019 Claire decided she was going to do a sky dive for the Nystagmus Network. Postponements because of the weather … Continue reading Thank you, Claire

TV host Richard Osman talks about nystagmus

Richard Osman talks about nystagmus, his career in TV and focusing on the positive in this interview for In Touch from 2014. Thank you, Richard, for choosing to help the … Continue reading TV host Richard Osman talks about nystagmus

Joanne smiles at the camera. There is an open piano in the room behind her.

An interview with Joanne

Violinist, soprano, opera impresario and Nystagmus Network member, Joanne Roughton-Arnold chats with Nystagmus Network’s Sue on Saturday 3 October as part of the Nystagmus Network virtual Open Day 2020. Hear … Continue reading An interview with Joanne

Sam's bike is leaning against railings in a mountainous landscape.

Sam’s challenge of a lifetime

In June 2021 Sam will embark on the challenge of his lifetime as he cycles 500 miles in 8 days on the North Coast 500 Cycle Ride for the Nystagmus … Continue reading Sam’s challenge of a lifetime

Night in with the Nystagmus Network

Virtual Open Day 2020, on Saturday 3 October, will close with A Night in with the Nystagmus Network, a virtual supper party for members and invited VIP guests. This is a … Continue reading Night in with the Nystagmus Network

Want to run a virtual marathon for the Nystagmus Network? You can! Here’s how.

It’s still possible to run a marathon this year. You’ve been keeping fit during lockdown. Your training continued on your daily time outside. All the big runs are cancelled, but … Continue reading Want to run a virtual marathon for the Nystagmus Network? You can! Here’s how.

A thank you card from the Nystagmus Network showing an image of 2 boys taking part in a team building exercise.

BBC charity appeal raises £8,000

Following transmission of the Nystagmus Network’s Radio 4 appeal, presented by Richard Osman, the charity has received universally positive feedback on the clarity of the broadcast’s message. One listener, in … Continue reading BBC charity appeal raises £8,000