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From our monthly virtual support networks to our free benefits advice, the Nystagmus Network is always here for you. As we emerge from the pandemic, we’re all feeling the financial pressure of increasing … Continue reading A new guide to nystagmus and benefits
With two years of global pandemic behind us, the Nystagmus Network is still here, supporting the nystagmus community, thanks to the dedication of our valued supporters, fundraisers and members. Thanks … Continue reading We publish our Annual Report 2021
As part of a SEND reform, which the UK government describes as ‘ambitious’, a green paper has been published as part of a consultation on a stronger national system for … Continue reading Reform for children and young people with SEND
Defining specialist skills development and best practice support to promote equity, inclusion and personal agency. Overview of the CFVI The Curriculum Framework for Children and Young People with Vision Impairment … Continue reading Curriculum Framework for Children and Young People with Vision Impairment (CFVI)
The Nystagmus Network / Fight for Sight joint call for a small grant award in nystagmus research, focusing on quality of life or causes (including genetic), diagnostic testing / analysis … Continue reading Grant funding available for nystagmus research
Members of the Nystagmus Network acquired nystagmus and oscillopsia forum recently enjoyed a weekend away courtesy of the Landmark Trust ’50 for free’ programme. The group stayed at the splendid … Continue reading Our ‘wonderful’ Landmark Trust weekend
Researchers, clinicians and students working in the field of nystagmus research are invited to attend this free international event, hosted by the Nystagmus Network on Friday 24 June 2022. Abstracts … Continue reading #Symposium2022
If 50 people each walked 10 miles and raised £100 in sponsorship, that would be £5,000 for nystagmus research. Why 500 miles? That’s roughly the distance you’d cover if you … Continue reading Could you help us walk 500 miles?
Nystagmus Network trustees have donated £17,000 to the paediatric fund of the University of Southampton’s Gift of Sight appeal. The money will be used to purchase a hand-held RETeval device, … Continue reading Our £17,000 investment in research
The Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend a further session in our series … Continue reading Parent Power April
