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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Vikki and Tom – our first abseilers


Vikki and her husband, Tom, were the very first to sign up to abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. … Continue reading Vikki and Tom – our first abseilers

Posted on August 1, 2018Author Sue RickettsCategories FundraisingTags abseil, Moorfields Eye Hospital, nystagmus research, University College London

Twins appeal!


Here at the Nystagmus Network we often hear from people who are twins or parents of twins. Sometimes both twins have nystagmus, but sometimes only one of them does. This … Continue reading Twins appeal!

Posted on August 1, 2018Author Sue RickettsCategories researchTags identical twins, nystagmus

Visual impairment and mental health


Children aged between 8 and 11 years old who live with a visual impairment are three times more likely to develop a mental health problem than children with no visual … Continue reading Visual impairment and mental health

Posted on July 26, 2018Author Sue RickettsCategories Information and Support, Living with nystagmus, Social and emotional aspectsTags children and young people, mental health, nystagmus, visual impairment

Open Day tickets on sale now!


Tickets for the Nystagmus Network Open Day 2018 go on general sale at midday today. With a packed line up of speakers and presenters, including Marsha De Cordova MP, Shadow … Continue reading Open Day tickets on sale now!

Posted on July 26, 2018July 27, 2018Author Sue RickettsCategories Charity highlights, Open Day 2018Tags nystagmus research
Simon in Nystagmus Network T shirt.

Well done, Simon! He did it!


Simon jumped out of a plane for the Nystagmus Network this morning and has raised over £1,000 for the charity! Fresh back from a family holiday, Simon took to the … Continue reading Well done, Simon! He did it!

Posted on July 26, 2018July 26, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags bucket list, nystagmus in the open, parachute jump, sky diving

Well done, Harry!


Harry and his family raised over £1,000 for the Nystagmus Network last weekend by taking part in a sponsored fun triathlon. What a phenomenal achievement! Well done, Harry! To sponsor … Continue reading Well done, Harry!

Posted on July 25, 2018July 26, 2018Author Sue RickettsCategories Fundraising, Thank yousTags bucket list, summer challenge

James and Thomas’s Summer Challenge


James and his little brother, Thomas, are taking on a very special challenge this summer to raise money for two charities very close to the family’s heart. James (8) and … Continue reading James and Thomas’s Summer Challenge

Posted on July 25, 2018Author Sue RickettsCategories FundraisingTags chromosome 18q-, fundraising, nystagmus, nystagmus network

Free Open Day tickets – final call!


Members of the Nystagmus Network have just 24 hours left to book their free priority places for the 2018 Open Day in September. If you haven’t already done so, please … Continue reading Free Open Day tickets – final call!

Posted on July 25, 2018Author Sue RickettsCategories Members only, Open Day 2018

Resources for teachers and parents


The school summer holidays may have only just begun, but for teachers this is the time they think about preparing all those courses and lessons for the new school year. … Continue reading Resources for teachers and parents

Posted on July 24, 2018July 24, 2018Author Sue RickettsCategories Information and SupportTags parents, pupils, school, teachers

A helping hand with taxes


Did you know that RNIB has a tax team that supports blind and partially sighted people with tax, tax credits and HMRC issues across the UK? The team, based in … Continue reading A helping hand with taxes

Posted on July 23, 2018Author Sue RickettsCategories Information and SupportTags RNIB, tax support

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