If you missed our BBC Radio 4 charity appeal broadcast on Sunday, there’s another chance to hear actor, singer, musician and children’s author, Gerard McDermott, who also happens to have … Continue reading Another chance to hear our appeal
Tag: congenital nystagmus
Ava
Ava was born with congenital nystagmus. She loves rugby and swimming. She’s full of life and lets nothing get in her way.
Cohen’s Story
“Cohen was diagnosed with congenital nystagmus when he was around 6 months old. He is now almost 10 years old. Cohen’s cousin was diagnosed with nystagmus a year or … Continue reading Cohen’s Story
Research participation opportunity in Plymouth
Perceptual Learning for Nystagmus We are delighted to offer people who have nystagmus the opportunity to take part in an exciting new research study at the University of Plymouth, in … Continue reading Research participation opportunity in Plymouth
Living with nystagmus through a global pandemic
Learning to live with nystagmus, finding our way in the world and developing independence creates a range of challenges as we move through the stages of life. Whether we’re talking … Continue reading Living with nystagmus through a global pandemic
Notes from the February Forum for adults with congenital nystagmus
Thank you to everyone who joined us for the Nystagmus Network February Forum for Adults living with Congenital Nystagmus. ECLOs Ian, our Information Support Officer made sure that everyone knew … Continue reading Notes from the February Forum for adults with congenital nystagmus
Notes from the January forum for adults living with CN
It was so wonderful to see and hear people exchanging experiences and tips on Tuesday evening, 26 January (morning for those who joined us from New Zealand!). Here are just … Continue reading Notes from the January forum for adults living with CN
Come along to the forum
As part of the Nystagmus Network virtual Open Day 2020 we will be hosting a series of zoom chats on Saturday 3 October. For parents There will be a virtual parents’ … Continue reading Come along to the forum
Raising nystagmus awareness in 2019
The Nystagmus Network works tirelessly to raise awareness of nystagmus, not only on Nystagmus Awareness Day but throughout the year. Why raise awareness? We firmly believe that the more people … Continue reading Raising nystagmus awareness in 2019
Support for adults with nystagmus
Whether you’ve had nystagmus all your life or have acquired it more recently, the Nystagmus Network is here to support adults with the condition, with information, research updates, news, meetings, … Continue reading Support for adults with nystagmus