nystagmus network – Page 2 – Nystagmus Network

Listen to our BBC Radio 4 charity appeal

Actor, singer, musician and children’s author, Gerard McDermott presents a BBC Radio 4 charity appeal on behalf of the Nystagmus Network today. Visit our BBC webpage here to listen The … Continue reading Listen to our BBC Radio 4 charity appeal

Gerard sits in a BBC radio recording studio, wearing a colourful shirt and smiling.

Gerard presents the Nystagmus Network our BBC Radio 4 charity appeal

Actor, singer, musician and children’s author, Gerard McDermott will present the BBC Radio 4 charity appeal on behalf of the Nystagmus Network on Sunday 11 August. Watch and hear Gerard … Continue reading Gerard presents the Nystagmus Network our BBC Radio 4 charity appeal

Take part in research on disorientation

A team of researchers led by Dr Heiko Rust, based at the University of Basel Hospital in Switzerland, are inviting members of the UK nystagmus community to take part in … Continue reading Take part in research on disorientation

Nystagmus Network Trustee Paul Rose and Dr Matteo Rizzi from the UCL Institute of Ophthalmology, looking at images captured with their high-speed camera.

Nystagmus Network visits pioneering research in London

The Nystagmus Network is committed to supporting groundbreaking research, from understanding the root causes of nystagmus through to managing and treating the condition. Recently our trustees, Paul Rose and Harshal … Continue reading Nystagmus Network visits pioneering research in London

A mature woman interacts with a number of young children.

Our Facebook group for grandparents

When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little person to get to know. It’s … Continue reading Our Facebook group for grandparents

Nystagmus Network members hold up their voting cards.

New date for the Nystagmus Network AGM 2023

The Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online on Wednesday 10 July at 7pm. Please note that … Continue reading New date for the Nystagmus Network AGM 2023

Trish is smiling for the camera and has long light coloured hair

Patricia’s Story

My name is Trish (Patricia). I was born in 1956. Nystagmus was virtually unknown back then. My parents struggled to keep me in mainstream school and I faced many challenges … Continue reading Patricia’s Story

Glen proudly standing in front of a running track wearing a medal. He is wearing sunglasses and a bright yellow jacket.

Glen’s Story

I was diagnosed with nystagmus almost from birth and I had glasses from around 18 months. I attended regular state school and struggled to see, however my parents were keen … Continue reading Glen’s Story

Flynn is smiling for the camera and is wearing glasses. He is standing in front of lots of greenery.

Flynn’s Story

This is Flynn. Flynn was diagnosed with congenital nystagmus at the age of 2. When Flynn was about 6 months old, our health visitor noticed something was not quite right. … Continue reading Flynn’s Story

Jan is smiling for the camera, wearing glasses, a pink blouse and a patterned scarf

Jan’s 1984 Story

I grew up knowing I was short-sighted but, other than that, I had a pretty normal childhood in a family with five brothers and two sisters. In school, I sat at the … Continue reading Jan’s 1984 Story