Katrina did well at school, has worked hard throughout the pandemic and keeps herself fit with clubbercise. She says: I have had congenital nystagmus all my life and I have … Continue reading How amazing is Katrina?
Tag: nystagmus
How amazing is Tim?
Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story … Continue reading How amazing is Tim?
How amazing is Doug?
Earlier this year, Doug ran the Royal Parks Half Marathon for the Nystagmus Network. He raised £200. Doug says: 13.1 miles. 25,000 steps, a step for every time someone has … Continue reading How amazing is Doug?
Trustees publish their annual review
The Annual Report 2020 by trustees of the Nystagmus Network is now lodged with the Charity Commission and available to the public to read. 2020 was undoubtedly a most challenging … Continue reading Trustees publish their annual review
Special edition scented candle raises funds for the Nystagmus Network
This lovely scented candle is specially created for the Nystagmus Network by Oli at No. 14 The Wick to celebrate Nystagmus Awareness Day 2021. The scent is Bergamot and Sage using a blend … Continue reading Special edition scented candle raises funds for the Nystagmus Network
Do you use your local offer?
Since 2014 all UK local authorities are required to put information about services for families with disabled children in a special web page called the Local Offer. Have you found … Continue reading Do you use your local offer?
Thank you, Tim
Children’s author, Tim Pearce who modestly describes himself as ‘the favourite children’s author you’ve never heard of’ joined the Nystagmus Network earlier this week to lead a fun and inspiring … Continue reading Thank you, Tim
Nystagmus research grant funding open for applications
The next round of small grant awards for nystagmus research is now open for application. The grant, funded jointly by Fight for Sight and the Nystagmus Network is worth up … Continue reading Nystagmus research grant funding open for applications
Nystagmus news for eye care professionals
The Nystagmus Network now produces a digital newsletter for Dispensing Opticians and Optometrists. The first edition has just been published, bringing nystagmus news, stories and information directly to high street … Continue reading Nystagmus news for eye care professionals
Children’s writing workshops this summer
Did you miss the children’s online writing workshop with fabulous children’s author, Helen Rutter? What a shame. That means you didn’t get to hear all about Helen’s inspiration behind her … Continue reading Children’s writing workshops this summer