Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents … Continue reading How amazing is Wyatt?
Tag: nystagmus
How amazing is Grayson?
I am Grayson and I am 5 on 18 June. I have Ocular Albinism and Nystagmus. When I started school in September, I was very scared and very nervous and was … Continue reading How amazing is Grayson?
How amazing is Poppy?
My name is Poppy. I’m 11 years old. I was diagnosed with nystagmus when I was 2 months old. I never allow my nystagmus to hold me back. I love … Continue reading How amazing is Poppy?
Two new nystagmus research projects funded
Fight for Sight and Nystagmus Network are funding research into the impact of glare in infantile nystagmus and albinism in the hope of improving outcomes for people with the condition. … Continue reading Two new nystagmus research projects funded
How amazing is Katrina?
Katrina did well at school, has worked hard throughout the pandemic and keeps herself fit with clubbercise. She says: I have had congenital nystagmus all my life and I have … Continue reading How amazing is Katrina?
How amazing is Tim?
Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story … Continue reading How amazing is Tim?
How amazing is Doug?
Earlier this year, Doug ran the Royal Parks Half Marathon for the Nystagmus Network. He raised £200. Doug says: 13.1 miles. 25,000 steps, a step for every time someone has … Continue reading How amazing is Doug?
Trustees publish their annual review
The Annual Report 2020 by trustees of the Nystagmus Network is now lodged with the Charity Commission and available to the public to read. 2020 was undoubtedly a most challenging … Continue reading Trustees publish their annual review
Special edition scented candle raises funds for the Nystagmus Network
This lovely scented candle is specially created for the Nystagmus Network by Oli at No. 14 The Wick to celebrate Nystagmus Awareness Day 2021. The scent is Bergamot and Sage using a blend … Continue reading Special edition scented candle raises funds for the Nystagmus Network
Do you use your local offer?
Since 2014 all UK local authorities are required to put information about services for families with disabled children in a special web page called the Local Offer. Have you found … Continue reading Do you use your local offer?