The Nystagmus Network is proud to be an official partner charity of #UKCharityWeek. Now in its 10th year, #UKCharityWeek is an annual celebration of charity and all about bringing people … Continue reading #UKCharityWeek 2022
Author: Sue Ricketts
Save the Date for Giving Tuesday
Our Community is strong. Please help us grow it even stronger. Giving Tuesday is a day when people and organisations from all over the world come together to support the … Continue reading Save the Date for Giving Tuesday
Carol’s nystagmus story
We know you will enjoy reading about Carol’s experiences. She thinks of her nystagmus as a quirky trait that doesn’t define who she is and hopes you will find her … Continue reading Carol’s nystagmus story
Next steps for NUKE
Your chance to influence the direction of UK nystagmus research NUKE is the Nystagmus UK Eye research group. Members are currently researchers, clinicians, academics and patient support groups, including, of … Continue reading Next steps for NUKE
Nystagmus Champions of 2022
A Nystagmus Champion is someone who goes above and beyond to raise awareness of the condition, to raise funds or generally make life better for people living with nystagmus. The … Continue reading Nystagmus Champions of 2022
Open Day to be virtual after all
After a three-year wait following the pandemic, an enormous amount of planning and anticipation, it is with huge disappointment that trustees and staff have decided to cancel this year’s in … Continue reading Open Day to be virtual after all
Leicester optician puts nystagmus in Focus
Having nystagmus hasn’t stopped Leicester’s Khalil Musani from forging a career in optics and helping others look after their eyes When Khalil secured a Saturday job at a Leicester opticians … Continue reading Leicester optician puts nystagmus in Focus
New research explores parental experience of their child’s diagnosis
What is the psychological impact on parents immediately following a child’s diagnosis of congenital sensory impairment? Rebecca Greenhalgh, Trainee Clinical Psychologist at Coventry University is leading a new research project, … Continue reading New research explores parental experience of their child’s diagnosis
Notice of the Nystagmus Network AGM
Following the announcement of a further national rail strike on Saturday 1 October, charity trustees have been obliged to take both Open Day and the AGM online. Notice is hereby … Continue reading Notice of the Nystagmus Network AGM
Nystagmus Network invests £17,000 in research
Nystagmus Network trustees donated £17,000 to the paediatric fund of the University of Southampton’s Gift of Sight appeal last December thanks to the generosity of our fundraisers and supporters. Someone … Continue reading Nystagmus Network invests £17,000 in research