Category: Fundraising

2 runners wearing Nystagmus Network show their medals after comleting the Royal Parks Half Marathon

Free run places available

Would you like a FREE RUN PLACE in the Royal Parks Half Marathon?

On Sunday 11 April 2021 the Royal Parks Half takes place for runners in their community. Track your 13.1 miles in your local area. This will be an unparalleled digital experience which mirrors as much of the in-person race as possible, including a premium race pack, sights and sounds from the beautiful course (from industry-leading augmented reality), leader boards and that much needed support from fellow runners and spectators.

You will be required to fundraise a minimum amount of £175 for the Nystagmus Network.

To apply for your free place please contact us

Knitted mascots

We’re back!

Nystagmus Network woolly nystagmus mascots are now back in stock in our online shop.

Dressed in warm woolly hats and scarves, each mascot has its own individual skin and hair colour, nystagmus and a null point.

Thank you to our wonderful volunteer knitter, Lynda.

Order your nystagmus mascot here

Or, if you prefer, you can order a nystagmus onesie mascot.

4 woolly knitted nystagmus mascots, wearing brightly coloured onesies and hats with tassels.
Nystagmus onesie mascots
Sam Jones

Sam’s challenge of a lifetime

Nystagmus Network Trustee, Sam Jones will be cycling 500 miles around the North Coast of Scotland in June this year to raise money for the Nystagmus Network.

It’s the ultimate road trip and the challenge of a lifetime.

What people may not realise is that Sam has nystagmus himself and is acually the reason the Nystagmus Network charity was formed.

Find out more about Sam and his trip in this video

Sponsor Sam’s North Coast 500 ride here

Children pointing at a computer screen.

Thank you for donating to our BBC Radio 4 appeal

Thank you to everyone who gave to our BBC Radio 4 charity appeal in June this year. The appeal raised £9, 230.

You can read what a difference the appeal has made to the charity and the nystagmus community on the BBC website here where you can also listen again to Richard Osman presenting the appeal on behalf of the charity.

Thank you, Richard

Read our appeal story here

A banner at a fundraising stall.

Thank you, Emma

For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. An amazing effort! Thank you so much!

At Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser (remember those?) for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. An amazing effort! Thank you so much!

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020  

Contact us here to volunteer

Find fundraising ideas here

Please make a donation here

THANK YOU

Claire and her young son smile for the camera

Thank you, Claire

Both Claire and her young son, Zac have nystagmus. In 2019 Claire decided she was going to do a sky dive for the Nystagmus Network. Postponements because of the weather and then again this year because of lockdown, meant Claire was waiting nervously nearly a whole year before she could make her leap. But she finally did it in 2020 and raised £420.

Thank you, Claire.

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020  

Contact us here to volunteer

Find fundraising ideas here

Please make a donation here

THANK YOU

Ahrian smiles for the camera.

Thank you, Ahrian

In 2020 Ahrian offered the Nystagmus Network her services as a volunteer. So far she has designed the logo for the @NystagmusYouth Instagram account and the new T-shirt for our 19-21 challenge.

Ahrian has nystagmus herself and wanted to give back something to the nystagmus community. She says: “I was born with nystagmus and grew up really anxious about it. It was really bad when I got nervous (which was 80% of the time) but then I realised I could take control of things like that. I learned to work with it and be proud of who I am. I was a competitive cheerleader for 10 years and loved tumbling, although it made me feel super dizzy!”

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020. 

Contact us here to volunteer

Find fundraising ideas here

Please make a donation here

THANK YOU

12 thumbnail images of people who have given so much to the Nystagmus Network and the nystagmus community in 2020.

#GiveBack2020

We’ve all had to give up so much this year and we’ll all be pleased to make it to the end of 2020.

But before we do, the Nystagmus Network is celebrating 12 people who’ve given back so much to the nystagmus community in 2020.

We’ll be telling their 12 stories in the run up to Christmas, so please keep checking back.

It was really hard to choose just 12 as so many people have been so generous with their time, energy, enthusiasm, expertise and skills.

Thank you to all of you.

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020. 

Contact us here to volunteer

Find fundraising ideas here

Please make a donation here

THANK YOU